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    • 18 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 1 hour, 22 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 2 hours, 10 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 2 hours, 10 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 3 hours, 22 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 3 hours, 22 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 4 hours, 40 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 1 day, 23 hours ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 3 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 2 days, 21 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 2 days, 22 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 3 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 4 days, 20 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 21 hours ago
      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Do your best to control your blood sugar but don't aim for perfection. That will never happen.
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    Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes?

    Home > LC Polls > Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes?
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    Are your blood glucose (BG) patterns different during weekends than weekdays? Select any that apply to you.

    Next

    If you use a device, how satisfied are you with the process of ordering replacement supplies for your sensors/sites that do not last their full standard duration?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Steven Gill

      Guess I’ll bite.

      Prior to diagnosis I was an extremely heavy drinker, it had it’s consequences. That slowed my sexual “activities,” after diagnosis even although I all but stopped drinker (3-4 beers are a lot now) I’ve made a lot more solitude life. I made other priorities (taught myself automotive repair/small engines/appliances, rescued 19 dogs/kept 10, Mother and 3 brothers lived with me through the years, 2 nephews, got a few folks from shelters, and mentored neighbor kids). Basically kept myself too busy.

      I checked “unsure” because ummm… everything seems to work okay but work literally destroys my body (at 62 I have 20 year olds that have threatened to quit so I had to slow down). While I’ve dated kept it more in the “friend zone,” even if ummm…

      Everything seems to work okay so I clicked “unsure. “

      3
      4 years ago Log in to Reply
    2. Kathy Morison

      High sugar while having sex kills any chance of having an orgasm

      1
      4 years ago Log in to Reply
    3. Mary Dexter

      Dyspareunia. Very painful. Went to a therapist specializing in that area to try to get those muscles to relax, but she moved to Ohio. Current doctors ignore problem with the attitude that I am old and should be glad not to do such things anymore.

      3
      4 years ago Log in to Reply
    4. rick phillips

      Owner of penile prostheses

      4 years ago Log in to Reply
    5. connie ker

      I felt so bad before diagnosis that I had no interest in sexual activity. Frozen shoulders from high sugars also depleted interest. My older husband was supportive and understood all too well.

      4 years ago Log in to Reply
    6. Joan Fray

      Married 49 years to same guy . We are still active in that department. Not as often as he would like, but it’s fun once he initiates it. A glass of champagne before sex is a ‘must have’ for me. Woo hoo!

      5
      4 years ago Log in to Reply
      1. Ahh Life

        joie de vivre!

        4 years ago Log in to Reply
    7. denise miller-dolan

      I was fine until menopause hit. I don’t recall the diabetes ever being a factor.

      4 years ago Log in to Reply
    8. Natalie Daley

      Everything works except my husband. He’s 85 and wishes he could but that ship sailed ten years ago. Back in the day, between hip surgeries, I had to watch dropping blood sugars.

      4 years ago Log in to Reply
    9. Drina Nicole Jewell

      No sexual dysfunction but we have definitely had some funny stories that involve my diabetes hahahaha and with my new tandem pump we have had some moments haha

      4 years ago Log in to Reply
    10. Dave Akers

      Interesting and uncomfortable topic… but after 18yrs T1D I believe I’m okay. It’s only when I’m LOW I have trouble “enjoying” the moment. But introducing chocolate syrup to raise blood glucose isn’t a horrible idea.

      7
      4 years ago Log in to Reply
    11. Sue Martin

      I think all the medications I have been on have significantly decreased my libido. My husband is very understanding, though he would prefer if I had more interest.

      4 years ago Log in to Reply
    12. Patricia Dalrymple

      I am grateful for how honest people are being. I marked unsure because I don’t know if it was menopause or diabetes. But at some point right before a hysterectomy for a football sized non-cancerous tumor, it all went to pot. No interest, pain. Doctors don’t want to talk about it and I’m not sure I do. The doc who did my hysterectomy I may have been able to talk to but he was stripped of his medical license for cocaine use. Lots of my friends experience the same thing. It’s a problem.

      2
      4 years ago Log in to Reply
      1. Todd Thedell

        Soon after my late-in-life diagnosis was the last time I had a proper erectile function. The doctors just threw the blue pill at me but I never liked the way it makes me feel and it never really worked anyway.

        4 years ago Log in to Reply
    13. Nick Trubov

      I would have to agree!

      4 years ago Log in to Reply
    14. Mick Martin

      Absolutely! I’ve been totally impotent (suffer from erectile dysfunction) since the age of 27 … I’m 63 right now.

      Initially, I spoke with a medical doctor who was the Medical Officer for clients at the Home for Elderly, Mentally Infirm clients (that’s people suffering with one or more types of dementia [organic brain failure], and he laughed at me, presumably believing me to ‘having a laugh’ with him.

      As a Social Worker, I later referred myself for Sexual Health Counselling [Counseling] and they tried all sorts of combinations of Vitamin B compounds, hoping that that would ‘do the trick’. It didn’t. I asked to be referred on to see a Genito-Urinary Specialist who went on to carry out physical examinations, x-rays, intravenous injections with a ‘dye’ included that would show up if there were ‘leaking’ blood vessels, etc.

      I began having intracavernosal injections … the first of which was only approved, in the UK, for veterinary use on horses. I was also given a letter to carry around with me in case I was admitted to hospital for any reason and detumescence was required.

      Although this was, in my humble opinion, mildly effective I was still disappointed with the results. Further appointments were made to see a number of different ‘specialists’ who tried intrapenile implants (MUSE), oral medications, such as sildenafil (Viagra), vardenafil (Levitra, Staxyn), tadalafil (Cialis). I have not tried avanafil (Stendra) which MIGHT offer something that the other oral medications didn’t.

      I’ve tried vacuum therapy, but had an experience where one of the constriction bands snapped off at the ‘pull tab’ where it’s removed. I ended up anxiously using a scalpel to cut the damned thing off as I was too embarrassed to attend my local hospital and have it removed by someone that has more experience with using scalpels. 😉

      Although I still ‘get the urge’, nothing happens.

      1
      4 years ago Log in to Reply
    15. Mick Martin

      Oops! I meant to add that I had considered a surgical implant but doctors here were reluctant to carry out the procedure due to me having diabetes and not having the best diabetes control.

      4 years ago Log in to Reply
    16. KarenM6

      I believe the answer is yes, but I couldn’t say for sure. No doctor has ever asked and I’m too mortified by the topic to bring it up myself.
      Then there’s the problem that _generally_ speaking doctors treat women in general like hypochondriacs and older women in particular get this treatment. So, even when I had the guts to bring up things like menopause etc, my concerns were pretty much dismissed.

      4
      4 years ago Log in to Reply
    17. Andrew Aronoff

      Hard to tell. I’m 69 years old. I’m not the same as I was decades ago. Age or diabetes or expectations or all three?

      1
      4 years ago Log in to Reply
    18. Ed Alley

      Yes, but not all from diabetes. I’m not in great shape, and I take a few antidepressant medications that contribute.

      4 years ago Log in to Reply
    19. Molly Jones

      I still enjoy sex with my spouse, but my body feels nothing. This physical capability disappeared more than ten years ago (still not close to menopause), but I am on many medications unrelated to diabetes that could have caused this unwanted side effect.

      4 years ago Log in to Reply
    20. ConnieT1D62

      To be honest, blunt and frank – yes. In my younger years I enjoyed sex without experiencing any physical symptoms of distress or discomfort. As I aged and lived with diabetes for 40, 50, and almost 60 years intercourse became uncomfortable and painful because of vaginal dryness.

      Most health care professionals (mostly older males) in my experience never discussed the topic, nor ever mentioned possibility of sexual discomfort or dysfunction being a possibility of peripheral neuropathy in the process of aging, especially with long term type 1 diabetes. It wasn’t until I was under the care of a (1) female gynecologist and (2) a female endocrinologist that the issue was properly addressed and problem solving solutions were advised.

      To be fair, for us long-time T1Ds the medical professionals treating our diabetes in earlier days were limited in their knowledge about consequences, particularly of various peripheral neuropathies, stemming from advanced duration diabetes in the body. They just didn’t know then what they know now about how long duration diabetes affects the various body systems, including the nerves and organs of sexual function.

      2
      4 years ago Log in to Reply
    21. Rick Martin

      Yes, at age 47 – 36 years after diagnosis. I tried all known therapies known to man and nothing happened – except when using injections. They worked but I could never get the dosage right and after 4 trips to the hospice due to erections lasting more than 4 years and becoming extremely painful.

      4 years ago Log in to Reply
      1. Rick Martin

        Oops – not hospice – hospital. It was bad but I didn’t think I was dying!!! LOL

        4 years ago Log in to Reply
    22. Wanacure

      I marked unsure, but how much inability to get an election is due to old age (77) less testosterone and how much is due to T1D for 62 years? When younger I was sexually active. Diabetes didn’t interfere. But in last 3 years, I’ve had just one orgasm. Two different pills didn’t work at all. This is why I’m considering Longevity Medical Clinic (near Seattle) and testosterone ointment applied for only 8 hours out of 24 hour day. They’re very open about how they treat men and women with sexual (or other) problems based on latest medical research. I’d keep my my present health plan coverage, and would have to pay out of pocket for such an extra….about $4,000/year. No, I’m not talking about hormone injections or oral anabolic steroids.

      4 years ago Log in to Reply

    Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes? Cancel reply

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