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    • 17 hours, 41 minutes ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 17 hours, 42 minutes ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 22 hours, 3 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 4 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 22 hours, 21 minutes ago
      Trina Blake likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I am curious. Do you routinely check the control glucose solution to be sure the meter is accurate?
    • 23 hours, 10 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 22 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 23 hours, 30 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 23 hours, 31 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 23 hours, 32 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 23 hours, 35 minutes ago
      Marthaeg likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 58 minutes ago
      Mike S likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 1 day ago
      KCR likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 1 day ago
      Jeff Marvel likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I use a CGM and my BG went over 180 seven times. Not unusual for BG go to 200+ after eating, then comes down. Yesterday and today my average BG was 150.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 1 day, 19 hours ago
      Lindsey Whitnell likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My "high" alarm is 130. When I hit that I consider: when I ate; could I have screwed up the bolus; what am I doing or will be doing; when I'll eat next. Rarely go over 150-160, by reacting and preventing highs found I actually use less insulin than just correct when it peaks....could never do this without a CGM I'm comfortable with, although with pens and an unmoving basel more fun (can't make fast adjustments for food, stress, heat, or activity). So the past several days zero over 180, just a few over 150.
    • 1 day, 21 hours ago
      Janis Senungetuk likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 21 hours ago
      Bruce Schnitzler likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      I had the same thing happen. I usually go below about 3 times but yesterday not at all. Amazing!
    • 2 days ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    • 2 days ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      It's been an unusual 24 hours for me and I haven't gone below 70 at all. (If I'd a been asked last week, totally different answer!) :p But, I'm doing really great today. So... Yay! :D
    • 2 days, 10 hours ago
      ConnieT1D62 likes your comment at
      The food we choose to eat as people with T1D is so personal, and each food impacts every person differently. What foods do you prefer to eat for your first meal of the day? Share what works for you in the comments!
      I follow my wife’s old adage, “Eat breakfast like a king, lunch like a queen, and dinner like a pauper.” And in a very king-like fashion and since I am retired, I do it most mornings in a very leisurely 3 or 4 fashion. The best breakfasts, by far, are those you have with delightful conversationalists with people of wide-ranging interests. I start with 2 or 3 cups of strong, dark-roast black coffee, nursed liked an expensive cocktail rather than gulped. Then come berries—raspberries, black berries, blue berries, and a complete box of strawberries, followed by protein potions of turkey peperoni slices or an egg or two. The cereal consumed is a mix of three-Uncle Sam’s mixed with Grape Nuts mixed with All Bran. Either milk or yogurt is used to top the cereal. I know not the calories, but the carbs I can count down to the first decimal point. And decidedly, the meal’s main attributes are the time spent and the conversations.
    • 2 days, 11 hours ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    Clear All
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you live in the United States, how would you best describe your insurance plan type and its annual medical deductible?

    Next

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    19 Comments

    1. LizB

      I fortunately have not have to use these programs. My insurance over the years (a number of different ones) has always covered my insulin, pens, needles, strips, pump supplies, sensors etc at a straight co-pay. I did not have to meet a deductible for anything. The only situation I would look into using one is if I needed an insulin that was not my insurance company’s preferred brand. I have always used Humalog and that is what my current insurance prefers.

      1 year ago Log in to Reply
    2. Eve Rabbiner

      I am grateful that my Medicare Advantage plan covers all of my supplies 100%. Insulin has a cap of $35 copay per month, which is not a problem for me.

      1 year ago Log in to Reply
    3. Mick Martin

      Although I selected “No, I’m not familiar with Patient Assistance Programs.” that’s not strictly true. I am aware of Patient Assistance Programs but I have no cause to use them.

      I live in the United Kingdom of Great Britain and Northern Ireland where I don’t have to pay for my medical supplies. This is taken care of through our NHS (National Health Service), which is resourced via direct taxation from all working people.

      Diabetes patients that receive treatment … either by oral medications or insulin do not have to pay any out of pocket expenses. i.e. medications, test strips, glucose testing paraphernalia, etc. is all paid for via our NHS.

      1
      1 year ago Log in to Reply
    4. William Bennett

      No, but I have kind of acted as one when a recently dx’d T1 friend hit the “donut hole” and was having to choose between insulin and paying her bills. I was able to give her a couple of vials from my Zombie Apocalypse supply stash, and also taught her about the necessity of hoarding insulin and how to go about it. Because the US healthcare system, y’know, sucks.

      4
      1 year ago Log in to Reply
    5. Tom Caesar

      I guess I’m lucky not to have needed assistance, but it’s getting more expensive all the time affording the things needed to treat my diabetes. $365 for a bottle of humalog, wish they were kidding me!

      1
      1 year ago Log in to Reply
    6. Jacqueline Sanders

      In the UK we all use the NHS (National health service) which we all contribute to through the tax system.

      1 year ago Log in to Reply
    7. Kristine Warmecke

      I answered no, but my endocrinologist & I have been trying to get me on the Novo Nordisk program, for a year now.

      1 year ago Log in to Reply
    8. Amanda Barras

      Back in 2011 I was forced to apply for the patient assistance program due to my employer not offering insurance but yet making too much money working p/t to qualify for government medical assistance. It was a lifesaver until my husband secured a job with benefits.

      1 year ago Log in to Reply
    9. Janis Senungetuk

      In the 1980’s I briefly used a Patient Assistance Program from Lily to reduce the cost of Humalog.

      1 year ago Log in to Reply
    10. Sarah Berry

      My pharmacy has been applying a coupon for the insulin the past 2-3 orders. I have been getting a 3 month supply of Humalog for $35 instead of $75. That is 6 vials for me.

      1 year ago Log in to Reply
    11. Mark Schweim

      When I lost my job in 2012, I tried getting on one of these, but back then there weren’t many such options available and the two I found both said that even though I lost my job in early April and was unable to find employment or income since the job loss, my income from January to April was already too much income to allow me to qualify for any patient assistance for any of my supplies!

      1 year ago Log in to Reply
    12. Patricia Kilwein

      My insurance has been paying all but $25 per vile or pen. Now that I’m on a pump and cgm my insurance allows a 3 month supply.

      1 year ago Log in to Reply
    13. Kim Murphy

      I would love to know about patient assistance programs especially any that covered Dexcom or Omnipod because my insurance coverage for these is not available.

      1
      1 year ago Log in to Reply
    14. djames313

      Qualified accidentally because insurance company would only cover a bolus insulin that my body rejects.

      1 year ago Log in to Reply
    15. George Lovelace

      In 2008 I started using Apidra and got onto their PAP until I started buying online from Canada which was an even bigger discount.

      1
      1 year ago Log in to Reply
    16. Steven Gill

      Used the Medtronic system 4 years ago but inheriting an old dog I had to choose her meds or supplies for the CGM. She survived 4 more years. Last year they offered the newest system with a warranty, I opted for the pump but declined the CGM. After a few phone calls and forms the total monthly out of pocket costs are less than the supplies for the pump alone. Was told with my income I’d have qualified back than.

      Now to see about a phone for the app.

      1 year ago Log in to Reply
    17. Bekki Weston

      I use the program with Afrezza, and get a 1-month supply for only $15.

      1 year ago Log in to Reply
    18. Lisa

      I have used a patient assistant program for prescriptions other than diabetes supplies.

      1 year ago Log in to Reply
    19. Stang777

      I have not used the patient assistant programs because I do not qualify for them, however I do use the savings cards (used like coupons or rebates) that the pharmaceutical companies offer which cover a lot of my copay costs for insulin. There is a difference between those two things, so I answered the question with “No, I am aware of these programs but I haven’t used them.”

      1 year ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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