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    • 7 hours ago
      ChrisW likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      Still twice a year. It carries much less weight than time in range and the GMI.
    • 18 hours, 8 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 18 hours, 48 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 17 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 17 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 19 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 18 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 15 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 17 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 4 days, 6 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 4 days, 6 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 14 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 18 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
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    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!

    Home > LC Polls > Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!
    Previous

    Many people take a break from wearing T1D devices during summers when they’ll be more active, wearing clothes that might have fewer pockets, or spending time at the beach. If you wear a pump or CGM, do you expect to take a “device vacation” for at least a few days this summer?

    Next

    Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. Janice B

      I was stopped because my bag was larger than allowed. Once I showed them my medical supplies and they ran the bag through the scanner everything was fine.

      5 years ago Log in to Reply
    2. Sherolyn Newell

      In my job, I occasionally have to go into data centers. They all have pretty heavy security, but one of them has a metal detector you have to walk through and an x-ray for bags. I thought that one of my devices wasn’t supposed to go through one of those. Naturally, I couldn’t remember which device or which thing. So I told them I couldn’t xray my controllers/receivers or walk through the metal detector. The guards didn’t seem like they had a procedure for the situation, but they let me in.

      5 years ago Log in to Reply
    3. connie ker

      Once going into a Cubs game, I was carrying a small cooler. Yes, I was asked about it, but when I told the man at the gate why I was bringing in the cooler, he allowed me to pass. I’m guessing this has all changed by now because that was quite awhile ago.

      5 years ago Log in to Reply
    4. Greg Felton

      Yes, but they were doing their job, and once I explained it was fine.

      5 years ago Log in to Reply
    5. gary rind

      Early on in T1D life, I went to Nashville for NCAA basketball playoffs. Entering the arena, I was carrying my little bag with needle tips, meter, stick, etc. Guard asked me what this was and I told him medical supplies. He didn’t open the bag but rubbed his hands over the outside of it. He said, “let me guess, you’re a diabetic”.

      3
      5 years ago Log in to Reply
    6. Britni

      I said “other.” I’ve not been prevented from entering anywhere, but I have had to work around “no bags/purses allowed” rules.

      5 years ago Log in to Reply
    7. Lawrence Stearns

      Yes, My bag has been checked at baseball games, airports, concerts. The most interesting was at my bank. The bank guard apologized, but I thanked him, and welcomed him to check my bag anytime. I have gotten to the point where I just walk up to any gate, or entry person, when I go somewhere and offer to allow them to look in my bag. Sometimes they look, sometimes they just wave me through. It’s funny because I carry a large variety of snacks, honey and juice bottles in my bag. I also carry my own food because of my celiac disease.

      5 years ago Log in to Reply
    8. Ann Auerbach

      I wasn’t stopped from going in but I had to put all my supplies in a clear bag that they provided. Now I have a clear zip bag that I use of going to an arena, etc. No issues with that.

      5 years ago Log in to Reply
    9. Nevin Bowman

      Yes, at sporting events, but they’ve always let me in with my supplies.

      5 years ago Log in to Reply
    10. Patricia Dalrymple

      I haven’t been stopped because I know to read the policies ahead of time. They are getting more and more restrictive though.

      5 years ago Log in to Reply
    11. Danielle Eastman

      This is such a fun question, being a fruit mule is what I’m here for. Picnics forbidden? Not on my watch.

      5 years ago Log in to Reply
    12. Maureen Helinski

      Yes, at a small but popular museum on outskirts of Rome, Italy. I had to put my supplies in a plastic bag at coat check. I protested to no avail. I felt nervous the whole time because I was then wearing the Medtronic pump and not accurate Enlite sensor. There were many steps in the museum.

      5 years ago Log in to Reply
      1. Jonathan Strait

        Yikes. This reminds me of a nightmare I had once (twice?)

        5 years ago Log in to Reply
    13. Anthony Harder

      Hasn’t happened recently (haven’t gone anywhere in the past 15 months). Usually larger events with their own concessions (sports events). I tell them I’m a T1D, show my med bracelet (that’s helpful reinforcement), and they wave me through.

      1
      5 years ago Log in to Reply
    14. AimmcG

      I have. Now that there are metal detectors I always tell them I am wearing an insulin pump and have been asked about candy in my bag. I don’t carry a lot so it’s usually something that they let slide.

      5 years ago Log in to Reply
    15. Sahran Holiday

      Sneak snacks into the movies, carry snacks everywhere especially to the dance studio. Enough for everyone to rummage in my bag and help themselves. Movies it’s more cause the candy is so overpriced. Big jar of individually wrapped miniature chocolates on my desk for everyone. They know if my Dexcom G6 starts beeping to come over and see that I eat.

      1
      5 years ago Log in to Reply
    16. Amanda Barras

      Luckily when I explain they usually screen my bag privately off to the side and sometimes mark my bag with a medical tag so that any other security staff knows that I’ve already been screened and ok to be in the event with my bag.

      1
      5 years ago Log in to Reply
    17. Kathleen Begbie

      After 9/11 at an airport

      1
      5 years ago Log in to Reply
    18. Maggie Morgan

      I tell whoever is at the gate that I have type one diabetes and have the snacks for emergencies. They usually get too uncomfortable to ask questions and do not care enough so they just wave me through.

      1
      5 years ago Log in to Reply
    19. Yaffa Steubinger

      I had Skittles in my purse for low blood sugar. They saw them and said I couldn’t take food in. I told them I was T1 and they said ‘ok.’

      1
      5 years ago Log in to Reply
    20. Caitlin St. Jean

      I brought a bag that was too big for the venue so that I could carry my supplies, they said I should have checked the rules ahead of time, but ultimately let me go in.

      5 years ago Log in to Reply
    21. Chris Deutsch

      Yes, at Fenway Park once. But I was allowed in after I explained. At Denver Int’l Airport, however, I once needed to discard my 6 oz juice boxes since they were too big….it’s getting harder to find the smaller 4 oz size.

      5 years ago Log in to Reply
    22. Hilary Welter

      When I was in Mexico City the bouncer wouldn’t let me into the bar after finding my meter in my bag. They didn’t understand what it was and wanted to keep my meter as security until I was ready to leave the bar. Obviously that didn’t happen… I found someone to translate in Spanish to better explain the bouncer why I needed to keep my meter with me.

      5 years ago Log in to Reply
    23. Marla Peaslee

      I just explain the situation and have never had an issue.

      5 years ago Log in to Reply
    24. Jeff Perzan

      Happens all the time, particularly at large sporting events where everyone is wanded and limitations on food and liquids exist. Over the years, the good news is that most of the security people are a lot more knowledgeable about diabetes; that’s also the bad news as many have revealed they have family members with diabetes.

      5 years ago Log in to Reply
    25. Sara Weaver

      I’ve had to dispose of yogurt before boarding an airplane.

      5 years ago Log in to Reply
    26. Catherine Davis

      I was stopped by a young airline employee when boarding a plane with 3 bags, one of which (a big one-could fit a plump pillow) was for medical supplies. I think her attitude was influenced by my looking like a “healthy” person, not apparently old and decrepit. She asked whether I used a CPAP, which I do not, and then said I was not allowed to board. I said, “Would you like to see what is in here? Let’s have a look.” Some grownup employee made her let me pass before I got it open. All this after having the pat-down because I won’t go into their millimeter wave machine (damages devices) and even though they let parents with kids go through the metal detector instead, and I have TSA Precheck (gave fingerprints etc.), I’m not allowed that option. I drive whenever it’s within a couple of days’ travel.

      5 years ago Log in to Reply
    27. Amy Malliett

      Questioned and told outside food or beverage isn’t allowed, yes absolutely. But the moment I say it’s because I have T1Diabetes, I’ve been waved through. I be never been actually prevented from entering.

      5 years ago Log in to Reply
    28. Siri Lachmansingh

      The only place I’ve had a hard time entering with my pump was a temple in India. They were super strict about there not being any cell phones in the temple and I was stopped multiple time by people working there. After explaining to many different people I was able to keep my pump on.

      5 years ago Log in to Reply
    29. Jennifer Franklin

      I have never been prevented from entering an event due to the contents in my bag. Security will ask about it, but usually saying “I have type 1 diabetes” is enough for them. Most events I’ve attended have taken place in California, but I’ve also been to a concert in Dublin, Ireland and Barcelona, Spain, and had no issues there either. I usually carry fruit snacks or glucose tabs and no liquids.

      5 years ago Log in to Reply
    30. MarleneHuels

      Yes, at Fenway Park once. for more https://www.stardewvalleyapk.me/

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      I’ve never been stopped, but I always carry a doctor’s note and explain the importance of my T1D supplies. It helps resolve any issues quickly. Also, check out Stardew Valley Game at https://starvalleyapk.com for an exciting farming game!

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    37. Mark GDR

      I’ve heard some people face issues bringing their T1D supplies to events, which is really frustrating. For anyone dealing with unexpected hurdles like this, sometimes calling in the experts like Garage Fixers can help solve other unexpected problems too—check them out here: Garage Fixers.

      8 months ago Log in to Reply
    38. Murphy Farmer

      Have you ever been stopped from entering a big event like a concert or sports game because you were carrying your T1D supplies or snacks? It can feel frustrating to explain yourself for something that’s simply essential. Many people share these moments so others know how to stay confident and prepared if it happens to them.

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    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments! Cancel reply

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