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    • 27 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 1 hour, 4 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 1 hour ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 12 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 12 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 19 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 1 hour ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 1 hour ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 1 hour ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 2 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 16 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 18 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 2 days, 23 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 3 days ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
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    Do you typically have your lab work performed before, during, or after your appointments with your main T1D health care provider?

    Home > LC Polls > Do you typically have your lab work performed before, during, or after your appointments with your main T1D health care provider?
    Previous

    For people who use a CGM that does not typically require calibrations: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a glucose meter with you just in case?

    Next

    Do you keep a low treatment close enough to your bed that you do not have to get out of bed at night when treating a low?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Wanacure

      If my provider suggests a lab test, I get it done ASAP. Makes no difference if it’s before or after I see my provider. Sometimes a lab test is suggested before an appointment, I try to comply. Regular tests like eye exams, cholesterol, kidney function, blood glucose levels, and regular downloads of CGM monitor, etc. are vital. If you don’t test, you don’t know. Sometimes I request a test, like for testosterone levels. Beware of BS like, “Well, that’s normal for your age.” Or, “Your insurance won’t pay for that.” Beware of privatizing/financilization of Medicare. Beware of privatizing/financialization of Hospice. See the latest issue of The Retiree Advocate. Or search for Puget Sound Advocates for Retirement Action.

      1
      4 years ago Log in to Reply
    2. Clare Fishman

      At Joslin, bloodwork is drawn at the start of the appointment and shows up on the computer while I am chatting with my endo.

      1
      4 years ago Log in to Reply
    3. Don P

      I usually receive lab requests 6 months prior, will get work done one week prior to visit so that I have lab results on my desk before Endo visit. This way I know the results & any concerns I may have.

      2
      4 years ago Log in to Reply
      1. TEH

        This is what I do also.

        4 years ago Log in to Reply
    4. Tim Shoppa

      I’ve had different endo practices do it different ways. My current endo visits have a blood test at the end, and a few days later my endo uses the patient portal to get the results to me. I would prefer it if I had my labwork a week before the endo visit, and previous docs I had did it that way, but that’s not the way my current endo’s practice does it.

      4 years ago Log in to Reply
    5. Drina Nicole Jewell

      Can I choose all of the above. Sometimes I forget and sometimes I remember to get it done a few weeks before my appt and sometimes I do it the morning of ,🤷🏼‍♀️

      4 years ago Log in to Reply
    6. Lawrence S.

      I get my lab work done anywhere from 4 hours before the Endo appointment to several days before. The only negative is that I have to either drive twice most times to get it done days prior, or spend the entire day at MAYO Clinic for blood work on the same day. We always review my lab results at the Endocrinologist visit. It is the main focus of the visit.

      4 years ago Log in to Reply
    7. Eva

      My answer really depends on the type of test. My endo checks my A1C on the spot and we discuss it along with my daily glucose values during the visit. However, when it comes to routine bloodwork for lipids, cholesterol, and vitamins (b12, D, b1, b6), those tests are run after my visit and his office will call if they find issues. My test results are posted online so that all my physicians (GP, OB/GYN) have access to them, which is vital.

      1
      4 years ago Log in to Reply
    8. Sherolyn Newell

      My original (retired) endo put in the lab order so that I could go in ahead of my appointment and she had the results. My current endo sends me across the hall for labs after my appointment. I preferred the first way.

      1
      4 years ago Log in to Reply
      1. KarenM6

        Same here!

        4 years ago Log in to Reply
    9. Kristen Clifford

      All of the above! It depends on the occasion. Lately I’ve been getting my A1Cs done upon arrival the day of the appointment, but there are times when, for whatever reason, they have me wait and do it another time between appointments.

      4 years ago Log in to Reply
    10. Mary Dexter

      Sometimes I get my labs done before, sometimes after. Sometimes the doctor decides they want something else that requires another blood draw. Although it would be nice to have the results discussed, sometimes the doctor just reads the numbers aloud. Or they focus on some slight variation to justify pushing what they do for everybody and dismiss larger variations that I would prefer to have addressed.
      Another reason to wait: the reason I attend the appointment is to have continued access to insulin and CGM. Last time I dropped by reception after my blood draw to ensure the previous day’s physician notes had been faxed to Edwards. Of course they assured me they had, but I think my physical and vocal presence was more effective than multiple phone calls over several weeks.

      4 years ago Log in to Reply
    11. gary rind

      drives me nuts when my endo doesn’t do the lab order until after the appointment!

      1
      4 years ago Log in to Reply
      1. gary rind

        he does do the A1C at the appointment.

        4 years ago Log in to Reply
    12. Jane Cerullo

      I get labs done in office two weeks before Endo appointment. That way I can see them and know what I want to discuss.

      4 years ago Log in to Reply
    13. Robin Melen

      It’s complicated. My endocrine oncologist has me do lab work and he reviews with me remotely every four months or so. And he does that only because I’m in cancer treatment (which caused the T1D in the first place). But my regular endocrinologist has not yet asked for blood work. I started seeing her in Oct, a month after my diagnosis. She just looks at my Dexcom/t.connect numbers during a telehealth call. Weird, huh?

      4 years ago Log in to Reply
    14. Katrina Mundinger

      Blood draw when I get to the office. They usually pull an extra vial so that if the endo decides he wants something else, they’ll already be able to do that without another draw. A1C is done by the time my doc sees me.

      4 years ago Log in to Reply
    15. Sherrie Johnson

      Who writes these questions. Isn’t it common knowledge for your three month appointment to get your labs done for the next appointment I don’t know I guess that’s just the way my doctor does it then we can discuss it anything else she may order after her visit

      4 years ago Log in to Reply
      1. Sarah Austin

        These questions are for research purposes. They aren’t specifically tailored for one person. I’ve had it done differently by different endocrinologists and how their particular practice is run

        2
        4 years ago Log in to Reply
      2. Sherrie Johnson

        In order to get pump supplies and Dexcom G6 Medicare requires you to get an A1c and see your doctor every three months is this different in different states I don’t quite follow

        4 years ago Log in to Reply
      3. Ahh Life

        The most compelling reason I know of for doing research is the phrase “common Knowledge.” No it is not. Those of us who have been around the track a lap or two remember 1) no correlation between carbs and insulin, 2) no pumps, 3) no CGM’s, 4) blood glucose not measured at all, 5) blood work done in the endocrinologists office, 6) blood work done off site, 7) blood work done and shipped electronically, and finally, 8) blood work done immediately and on site.

        It reminds me of two lines from Macbeth. In one, Duncan states: “What bloody man is that? He can report, As seemeth by his plight.

        The other line? “And Fortune, on his damned quarrel smiling, . . . But all’s too weak.”

        4 years ago Log in to Reply
      4. Sherrie Johnson

        I remember it all 61 years for me. Medicare has us on a tightrope.

        4 years ago Log in to Reply
    16. Kristine Warmecke

      For the past 4 years it’s been done at my port draw (oncology) closest to my every 3 month check up.

      4 years ago Log in to Reply
    17. Joan Benedetto

      Annual lab work is done just prior to next scheduled appointment. Blood for A1c is done via finger stick onsite at time of appointment (every 4-5 mos), and results are given during that appointment.

      4 years ago Log in to Reply
    18. Pauline M Reynolds

      Covid has thrown a money wrench into when I get my lab work. My appointments have been in person or on the phone, and I can’t quite sync the labs so that they are just before my visit. Hoping this time is the charm.

      4 years ago Log in to Reply
    19. Sue Martin

      I haven’t seen my T1D provider in person for quite a while, only via video conference. Since I had a kidney transplant I’ve had lots of lab work due to that. I suspect that they look at those labs and add to the list what they want to see.

      4 years ago Log in to Reply
    20. Melissa Childers

      This depends on if it is yearly or just A1c. I get yearly labs: Thyroid, cholestrlerol, cbc, creatine, etc done before my appointment, but A1c is an in office fingerstick with results in about 5 min after arrival, between in tale and meeting with endo.

      4 years ago Log in to Reply
    21. T1D5/1971

      For A1c, the fingerstick is done prior to seeing the doc.
      For all the other fun and games, it just depends. Too many issues. Too many docs.

      4 years ago Log in to Reply
    22. KarenM6

      The process I’m being asked to follow is right smack dab in the middle of changing.
      My retired endo had me go to the lab a week or so before my appointment so that we could discuss all the results when I saw them.
      My new endo will draw blood at the appointment. I prefer having current/up-to-date results to talk about instead of talking about results from 3 months ago.
      I don’t know if it will just be an A1c or if I’ll get the “extras”: cholesterol, CBC, Vit D, calcium, etc. I hope I get the extras!!

      2
      4 years ago Log in to Reply
    23. Janis Senungetuk

      I try to get all labs done a couple days before my appointment because I want to know results and make a list of concerns/questions before the appointment. My endo appreciates knowing what I want to focus on, so I send her a note via MyChart the day before the appointment.

      4 years ago Log in to Reply
    24. Steven Gill

      I don’t see an endocrinologist , my doc ( a. GP) gets my a1C tested during the intake and we discuss this. Sometimes a blood draw and I’ll get a card mailed with instructions: generally “all normal, no changes needed.”

      In the past had blood drawn a week or so early but little was discussed.

      4 years ago Log in to Reply
    25. PamK

      I chose “other” because I like to get my lab work done before my appointment so that I can discuss the results with my doctor. However, given my work schedule I am not always able to as the lab is only open when I am at work. This means I have to take time off work to get it done and my employer is not always willing to let me do so without penalty. For the moment, I do what I can.
      I’d also like to point out that my previous endo had my blood drawn after I saw him and we would discuss the results via email between visits. I would sometimes have to wait to ask questions, because his PA did not always have the answers. This was frustrating!

      4 years ago Log in to Reply
    26. David Hedeen

      rapid A1c is done prior, I receive result in 15 minutes to share with provider at visit. Other blood work results are available next day

      4 years ago Log in to Reply
    27. Molly Jones

      My bloodwork is not done before my appointment, but my time in range is available to be looked at and discussed during my appointment. My bloodwork is available shortly thereafter by MyChart if necessary, which has never happened in difference to time in range.

      4 years ago Log in to Reply

    Do you typically have your lab work performed before, during, or after your appointments with your main T1D health care provider? Cancel reply

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