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    • 14 hours, 41 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 42 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 33 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 16 hours ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 13 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 12 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 34 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 36 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 43 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 8 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Home > LC Polls > Do you think your (or your child’s) performance in school was affected by T1D?
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    If you are currently using an insulin pump, where on your body is your pump site placed right now?

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    If you have moved away from your T1D care provider, how challenging was it to find a new T1D care provider who was accepting new patients?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. GLORIA MILLER

      The kids that I knew who developed diabetes when young were all excellent students.

      6 months ago Log in to Reply
    2. Christine Gran

      High blood sugars causes my child migraines and he has missed numerous days of school due to that.

      6 months ago Log in to Reply
    3. Kristine Warmecke

      At times, yes my performance was affected. While in grade school urine testing was all that was available. So knowing where one’s blood sugar level was unheard of.

      2
      6 months ago Log in to Reply
    4. Jeff Balbirnie

      Net to my knowledge, T1D had zero known effect(s) re: my academic performance directly. Hospitalized/more I’ll from XYZ due to diabetes occasionally, but causal to academic issues never, not once

      6 months ago Log in to Reply
    5. AnitaS

      I am not sure. It possibly could have as I went to school with diabetes from third grade through 12th grade without the benefit of blood sugar monitoring. In college is when blood glucose meters came into play for me. There were times my sugar level went low during class so maybe I couldn’t concentrate as well at those times?

      1
      6 months ago Log in to Reply
    6. Ahh Life

      I am compelled to say, no, since I have known no other life. 18 years of school plus kindergarten. I, like so many other people, got my real education after I got out of school. You know, the place where they give the test first and the lesson afterwards. ︡⚈ ︵⚈︠

      1
      6 months ago Log in to Reply
    7. kflying1@yahoo.com

      My kid’s were all out of school when I was first diagnosed as being diabetic. All are now have been diagnosed as being pre-diabetic. 3 with PCOS (and 1 miracle grandson!)

      6 months ago Log in to Reply
    8. pru barry

      I don’t think it affected me academically, but this shy kid entered high school with the shame of someone like a drug addict. Letting anyone know I lived on daily injections felt mortifying. So much better being an adult, and knowing all that horror is behind me. Times have changed for the better :^} !

      1
      6 months ago Log in to Reply
    9. Jneticdiabetic

      Diagnosed in college. Succeeded despite the challenges T1D and being on NPH insulin sometimes posed. Highs sometimes made me drowsy during lectures I loved. Lots and highs and lows trying to avoid NPH peaks and crashes during 2-3hr science labs. These surely affected my performance at times. Overall, I think living with T1D has made me resilient and an effective and creative problem solver, so also enhanced my performance.

      2
      6 months ago Log in to Reply
      1. Lyn McQuaid

        I was diagnosed in college too and perhaps about the same time period as you as I have the same memories of problems with NPH timing. Timing was difficult back then! But I never said a word about it to any of my professors.

        I have now been a college professor myself for 22 years and have only had two students who revealed to me that they were T1 and hence may need to eat during class, leave the room, etc.

        2
        6 months ago Log in to Reply
    10. Drina Nicole Jewell

      My son says it does when he has to miss school due to an early morning low that knocks him on his behind or a stubborn high we can’t get down throughout the night. Or when he has to leave early. He doesn’t feel lows so those don’t affect him more than the few minutes it takes to treat. Highs at school are typically from his gym class, that Carson spike I think he called it. But drops on its own so he does t do a correction dose. He is really good at communicating to his teachers about his needs so other than missing school due to his type 1, he says no it doesn’t affect him.

      6 months ago Log in to Reply
    11. Janis Senungetuk

      Yes, I definitely think all the lows and highs I experienced from 1955 on made a difference. From 3rd grade until 8th grade I was taking one AM injection a day of beef/pork Regular insulin. I tested my urine twice a day…and that was the available glucose management. The years from 8th grade thru my undergraduate studies included a carousel of different insulins resulting in frequent sudden lows that made taking notes, paying attention to lectures and demonstrations and taking exams difficult. I did well in most subjects, with math being an exception, but I have no way of knowing if I could have done better.

      3
      6 months ago Log in to Reply
    12. Mary Ann Sayers

      Because I was only 7 years old when dx with T1D, dealing with a shot every day and no longer able to eat sweets, school curriculum and my performance was the last thing I was thinking about. Was it effected? I don’t think so. NOT UNTIL I GOT TO BE THIRTEEN!!! Who wants to go through puberty and deal with T1D at the same time?!!! And add high school curriculum and the personality changes that are part of that experience and you’re asking if T1D affected my performance? I don’t have anything to compare it to!!! I’ve been T1D since the 2nd grade!!!

      1
      6 months ago Log in to Reply
    13. Lawrence S.

      I did not have T1D while I was in school. But, I can definitely tell you that T1D did affect my performance at work and during work related trainings. Especially before blood testing was available, before insulin pumps, and before CGM’s. I was constantly fighting off low blood glucoses multiple times daily throughout those years, and my brain was in a constant fog. Once I got on an insulin pump, using blood test strips, I was able to stay up with my peers.

      2
      6 months ago Log in to Reply
      1. Amanda Barras

        I agree! Had no problems in school as far as grades etc were concerned but at work through the end of high school and college I had plenty of lows at work that interrupted my ability to do my job. I do not miss those pre-pump/CGM days!

        1
        6 months ago Log in to Reply
    14. Ms Cris

      …but it sure has impacted my job performance.

      6 months ago Log in to Reply
    15. Britni

      I said no mostly because there wasn’t an “unsure” option. I definitely struggled through a few standardized tests (wet myself during one, had to cope with bigoted proctors during another), but I scored well despite the distractions. Who’s to say if I might have scored better without them?

      6 months ago Log in to Reply
    16. Pauline M Reynolds

      Other because there should have been a category that indicated a diagnosis of T1D after leaving school.

      6 months ago Log in to Reply
    17. Kim Murphy

      It was affected if I had a low blood sugar but not all the time.

      6 months ago Log in to Reply
    18. Bob Durstenfeld

      In the 1960s I often went to school both high and low. My granddaughter with T1D uses a Dexcom G6 with Follow. So much easier.

      1
      6 months ago Log in to Reply
    19. Lynn Smith

      I said no because other than the 3-4 weeks I missed of 7th grade when I was first diagnosed, I don’t remember missing any school due to my diabetes.

      6 months ago Log in to Reply
    20. M C

      I waffled while deciding ‘how’ to answer…. I eventually went with ‘no’, as overall it really had little impact. On the ‘yes’ side, it impacted me only in the 1st year I was diagnosed, as it caused me to miss a good portion of the last 1/3 of that school year. It also caused me to be demoted by a gym teacher, who decided through her ignorance, that I wouldn’t be ‘able’ to cope remaining on the top field hockey (1st- 11’s) team due to my T1D diagnoses and demoted me to the 2nd team (2nd-11’s). What was bizarre, in the extreme, was the fact that I not only played on the 2nd-11’s, but asked to fill in on the 1st-11’s for most of their games. Made no sense then – still makes no sense today! After that year, school wasn’t impacted by my T1D. Went on to earn 3 university degrees after finishing with high school – so, overall, diabetes did not affect my performance.

      1
      6 months ago Log in to Reply
    21. Amanda Barras

      No, I was dx at age 4, was an honor student my entire schooling career. If anything it made me more responsible.

      1
      6 months ago Log in to Reply
    22. mbulzomi@optonline.net

      I answered “NO”. I was 23 years old and just discharged from USN.

      6 months ago Log in to Reply
    23. Wanacure

      Before onset of T1D in Jr. High School (9th grade) I didn’t like to exercise much. After diagnosis I learned to enjoy exercise as much as I enjoyed reading books, always a good student. Really enjoyed HS Honor Classes and friends there. Always did great on tests, scored high on SATs, but found college disappointing at first. Eventually attended grad school. As a kid & young adult I was on beef/pork NPH and big carbo ADA diet with easy to understand exchange system. I kept my diabetes a secret, because I wanted to fit in, didn’t want to be treated differently. But fortunately my mom probably informed school system and school nurses and some parents of my closest friends (w/o telling me). I did my best to avoid lows, usually not a problem. Used Clinitest tablets and test tube at home, and when testape was invented, I relied heavily on that for convenience to avoid sugar in urine (180 mg/dL accepted as threshold for sugar appearing in urine). Finger-tip drop-of-blood glucose meter/strips a huge step forward, instead of the once per year lab test! With diabetes injections and no more candy, I felt more in control, more responsible for my life. That confidence was undermined at times as young adult and in adulthood by unexpected nighttime hypoglycemic tongue-biting seizure episodes. No longer a problem with seizure med and now a CGM. Maybe I don’t need seizure med after all for borderline “epilepsy?”
      Suggested Question of The Day:
      Using a pump have you been able to go off seizure medication? This would probably have to be addressed to a much larger audience that included the “seizure disorder” community to get any answers.

      6 months ago Log in to Reply
    24. Steve Rumble

      My T1D was diagnosed when I was in my early 20s. It did not affect my time in college.

      6 months ago Log in to Reply
    25. Cheryl Seibert

      No my performance was not affected. I had T1D throughout all my school years. I had a near perfect GPA (the 0.02 below a perfect GPA was NOT due to T1D: LOL!) and I was co-valedictorian of a class of over 400. T1D caused me issues in my school years, but I don’t remember it holding me back on anything. I have more trouble now that I’m retired, with extended family health concerns.

      6 months ago Log in to Reply
    26. PamK

      My senior year of high school my blood sugars were out of control. I felt sick for most of the first semester and missed a lot of classes as a result. When I asked for help getting caught up, several teachers said it wasn’t possible. Most let me switch to easier classes, except one. This teacher insisted I stay in his class, but would offer no assistance. As a result, I failed his class and was not allowed to graduate until after summer school.

      6 months ago Log in to Reply
    27. kathy Granzow

      i know they were affected by MY diabetes – I wound up having a DKA a few months before my daughter was to graduate HS and she missed an important assignment because she just couldn’t do it with my hospitalization – I was in a coma for at least three days

      5 months ago Log in to Reply

    Do you think your (or your child’s) performance in school was affected by T1D? Cancel reply

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