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    • 4 hours, 47 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 22 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 23 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 6 hours, 24 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 6 hours, 24 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 7 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 8 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 11 hours, 58 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 12 hours, 46 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 53 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 15 hours, 54 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 13 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 13 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 26 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 13 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    Do you think your diabetes healthcare provider uses language that is clear and easy to understand?

    Home > LC Polls > Do you think your diabetes healthcare provider uses language that is clear and easy to understand?
    Previous

    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.

    Next

    How satisfied are you with your current T1D therapy regimen?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    11 Comments

    1. connie ker

      WOW, 98% of diabetic patients think well of their healthcare provider. Sometimes, the healthcare providers learn from their patients too. So I always go to appointments with a list of questions seeking more knowledge. Sometimes they don’t have the answers, sometimes they do, but I appreciate the time they spend with me.

      4 years ago Log in to Reply
    2. Thomas Hatton

      I do the same, Connie! To the question of the day, if I hear something I don’t understand, I ask. No stupid questions, only more knowledge…

      4 years ago Log in to Reply
    3. Beth Franz

      I have an NP mainly for yearly bloodwork and prescription requests. I research and own everything I do for T1. I feel like half the time she doesn’t know what I’m talking about!

      4 years ago Log in to Reply
    4. Ernie Richmann

      I answered yes. I also ask questions or restate the information in my own words to confirm understanding. I read for more information and a greater understanding. I have few trusted resources that I often rely on for accurate information.

      4 years ago Log in to Reply
    5. Christina Trudo

      I have come to believe that most providers tailor their language to the (perceived) understanding of the patient. I worked in hospitals for many years so I think I have a vocabulary that may be beyond my actual understanding at times. Providers may assume I have more knowledge than I do. I need to be careful not to nod and bluff my way through things I don’t understand so well. Often I don’t realize that I don’t understand until after the appointment.

      4 years ago Log in to Reply
    6. Leona Hanson

      Yes my PCP explain everything so I understand and yes he is also learning about my pump which is a ++for both of us

      4 years ago Log in to Reply
    7. Becky Hertz

      My previous endo was great! Sally (for me) she retired. I haven’t met my new endo yet so don’t know how communication will be.

      4 years ago Log in to Reply
    8. Patricia Dalrymple

      Yes, in fact they talk down to me a little. I asked to speak to a nutritionist who said she wanted me to come to a group meeting. I told her no. By the end of our convo she agreed and said I could probably teach the class. When it means saving your own life, you tend to learn quick.

      4 years ago Log in to Reply
    9. Pat Reynolds

      I think it depends on what “your healthcare provider” means. I have had doctors who are abysmal, but swiftly move on: I work with teams who treat me as a co-researcher. But outside the teams I control (control as in, I can move on) I find that too many providers of information are failing. Some by _not_ catering to those with a higher comprehension level. Others by not getting communication basics right. Today, for example, I have been trying to find advice on diet for a blind pre-diabetic (equivalent of what I can find online, let alone tailored to their other health issues which mean that my usual go-to recommendations for non-spiking snacks are ruled out. What this person needs is a dietician who understands blindness, not me.

      4 years ago Log in to Reply
    10. Sealani Weiner

      My doc is a type 1 – he actually told me about this fabulous website – and he is so responsive. Whether its in person, or I pose a question or concern in the patient portal, he always gives me excellent direction. In addition, I have to say that even at times when I was down on myself for a too high A1c, he was kind and supportive. And he has been a cheerleader since it has been going down, down, down since I changed how and what I eat nearly two years ago. My last two visits, for the first time in my diabetic life (20+ years), my A1c was 7. (That may not be low for many of you, but consider that it was 13 before I got diagnosed.)

      4 years ago Log in to Reply
    11. Sally Numrich

      I never have any issues with communication with my medical team. If I don’t understand something, I just ask.

      4 years ago Log in to Reply

    Do you think your diabetes healthcare provider uses language that is clear and easy to understand? Cancel reply

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