Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 27 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 28 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 29 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 29 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 3 hours, 12 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 3 hours, 13 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 6 hours, 3 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 51 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 58 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 9 hours, 58 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 18 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 18 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 31 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 23 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 23 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 7 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 10 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 7 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
    Previous

    If you have gone through the process of getting an insulin pump, how easy or difficult was it for you to get the pump you most wanted to use?

    Next

    What was your A1c at the time of your T1D diagnosis?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Conditions

    Protected: What to Know About Thyroid Conditions with T1D 

    Michael Howerton, 12 hours ago 7 min read  
    2025 ADA

    T1D Exchange Announces 13 Real-World Data Presentations and Posters at the American Diabetes Association (ADA) 85th Scientific Sessions 

    T1D Exchange, 1 week ago 4 min read  
    Mental Health

    What is the Emotional Impact of Screening for T1D? 

    Hannah Doskicz, 2 weeks ago 5 min read  
    Meet the Expert

    Meet the Expert: Advancing Research To Treat, Delay, and Prevent the Development of T1D 

    Jewels Doskicz, 4 weeks ago 7 min read  
    Advocacy

    Sam Scott, PhD: The Science of Exercise with T1D 

    Jewels Doskicz, 1 month ago 9 min read  
    Research

    The T1D Exchange Fear of Hypoglycemia Screening Project 

    Sarah Howard, 1 month ago 6 min read  

    35 Comments

    1. Ahh Life

      No. 72 years T1D and have the exact opposite–acute awareness.

      I am ready to eat lions, tigers, bears, crow bars, thumb tacks, table legs — anything! — to relieve the symptoms. Needless to say, I am very poor at the 15 carbs wait 15 minutes rule. Otherwise, I am quite disciplined. Sigh! 🙃

      6
      3 years ago Log in to Reply
      1. mojoseje

        Same. How is that even possible? Lol

        2 years ago Log in to Reply
      2. Kristine Warmecke

        @Ahh Life I wish I had that keen alertness. I’m only 40 years into it.

        2 years ago Log in to Reply
    2. Jordan Harshman

      I go through phases where I’m too low too often and get desensitized to it (about a month) followed by another month where I’m really sensitive to lows as I’ve brought my time in range back to (more) ideal

      2
      3 years ago Log in to Reply
    3. Jane Cerullo

      Always feel but I tolerate pretty low readings. Just because 😼 don’t run high a lot.

      1
      3 years ago Log in to Reply
      1. Lyn McQuaid

        Same here. I don’t really feel low until I’m in the 50’s so I’m not sure if that means I’m “unaware” if I don’t feel anything until then?

        1
        2 years ago Log in to Reply
    4. Barbara Bubar

      After 72 years, yes, like Ahh Life, my eyesight changes and I see a sort of yellow shape when I’m around 55 or lower. It’s actually handy that it happens in case the Dexcom is not quite there yet.

      3
      2 years ago Log in to Reply
    5. Mike Plante

      Was 61 on Dexcom and 51 on Contour Next last night, but I just felt normal.

      1
      2 years ago Log in to Reply
    6. Steve Rumble

      It used to be a problem before I started using a CGM

      1
      2 years ago Log in to Reply
    7. mojoseje

      I have to be in my 40s and my vision going dark before I feel low. A lot of times I feel normal and CGM is the only way I know I’m going low.

      1
      2 years ago Log in to Reply
    8. Sherolyn Newell

      In the last couple weeks, I’ve noticed feeling the lows sooner. I don’t know why, it will probably change back. That’s the way T1D seems to work, likes to keep you guessing.

      1
      2 years ago Log in to Reply
    9. Lawrence S.

      I have occasional unawareness. Usually, when my blood glucose drops quickly.
      Other times I feel light headedness, occasionally a “hole” in my vision. Usually, by the time I’m sweating profusely, it’s too late. I’m deep into it.

      1
      2 years ago Log in to Reply
    10. Rick Martin

      Yes I have complete unawareness. AND, I thank God everyday for my CGM.

      5
      2 years ago Log in to Reply
    11. Joan Fray

      I wear my Dexcom all the time so I very rarely go low. Only when exercising. Then I just get more tired than warranted, so I check if I’m low. Glucose tabs and some food do the trick. Lows aren’t my problem. My ‘icky’ stomach is my problem. Eat to live, 15 units of humalog for 24 hours, plus .3 basal all the time. Is that a lot?

      2 years ago Log in to Reply
    12. Judy Hampton

      Until I started using a cgm I was very aware of dropping blood sugar. Now it seems my body depends on the cgm to alert me. I really wish I could still recognize LBS without the cgm.

      2 years ago Log in to Reply
    13. Daniel Bestvater

      T1D for about 45 years, I seem to feel a low BG around 3(54).
      I have been down to 1.8(34) recently before detecting any symptoms. I don’t think my stomach works properly after 45 years! Some days are normal and other days it seems only liquid carbohydrates are absorbed.

      2 years ago Log in to Reply
    14. Claude Laforest

      No, because my CGM alerts have replaced my symptoms, alerts are much more reliable than symptoms and less variable!

      1
      2 years ago Log in to Reply
    15. kenneth brooks

      I used to have hypoglycemic unawareness but in ten years since CGM, my sugar never gets low enough to be a problem

      2 years ago Log in to Reply
    16. Sue Martin

      This is one of the reasons I got a CGM. The other reason is that my symptoms didn’t always manifest the same way.

      2 years ago Log in to Reply
    17. Kathy Morison

      The only time I experienced hypoglycemia unawareness was when I was using humalog insulin

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Yes, both hypo and hyperglycemia unawareness. If I’ve dropped to the low 40’s my vision becomes impaired and I’ll see light yellow amorphous blobs in my central vision. Fortunately that rarely happens now because of CGM alerts.

      3
      2 years ago Log in to Reply
    19. William Bennett

      Important to note that hypo awareness is a threshold thing that changes depending on what your average BG is like. People who run very high–up around 200–can start feeling low at levels a lot of us with tight control would consider high in their own rate. 120-50 e.g. Before getting a CGM, back when I was on MDI, I’d feel trembly and my knees would start locking up in the 70s. Now that I have much tighter control (last A1C was 5.8) I don’t feel low above 60, and even below that if it’s a slow drop I’m now aware of it until I start getting that flash-bulb effect in the center of my vision. Speed of descent also seems to have a lot to do with it. The old insulins could make you crash very hard all of a sudden because of the very long effect curves and the practice of taking both types in one shot. So shaking OMG I’m gonna pass out lows were far more of a fact of life back then than they are for me now.

      1
      2 years ago Log in to Reply
    20. Jneticdiabetic

      Hypo unaware and appreciative of my CGM. Rarely feel symptoms unless I’m dropping quickly. Recently had a middle of the night CGM alarm that I was 80 and dropping. Got up, stumbled and could tell I was already much lower than that. Required a mega carb binge to correct. CGM may lag, but it saved the day again this time.

      1
      2 years ago Log in to Reply
    21. John Williamson

      Prior to going on a pump 14 years ago I had sever hypoglycemia unawareness. After a year on the pump (and much better control than on MDI) I began to detect even low 70’s.

      2 years ago Log in to Reply
    22. LuckyPineapple

      I FEEL every second of being low..that’s why I try so hard not to get that way ever. I have very sever hyper-unawareness though. I can’t even tell if I’m 400+

      2 years ago Log in to Reply
    23. Robert Kovalik

      I wear a CGM.

      2 years ago Log in to Reply
    24. Bob Durstenfeld

      I am thankful CGM alarms.

      2 years ago Log in to Reply
    25. pru barry

      I think my nervous system is losing its mojo. Lots of neuropathy, lots of not feeling highs or lows. So glad to have my Dexcom with the Tandem! I’m making an effort to rely more on this technology.

      2 years ago Log in to Reply
    26. Nancy Burgess

      Since I’ve had T1D since 1960, I’ve lost the ability to feel hypoglycemia. I totally rely on my Dexcom to keep me in the range.

      1
      2 years ago Log in to Reply
    27. Kristine Warmecke

      I’ve been hypo unaware since the early 90’s. It’s not fun. I wish I’d aware, even though it was scary and made me feel like crap. I was made to get Medtronics CMG in July 2007 because I had my first and only car accident due to being unaware of my hypo. I couldn’t stand all the alarms, false low & high’s, need to calibrate it, etc. and stopped using it. I was introduced to Dexcom a couple years later and started with the G4, far more accurate for me and still use Dexcom but it doesn’t catch my fast falling or rising numbers as well my DAD dose now.

      1
      2 years ago Log in to Reply
    28. Carol Meares

      I put “sometimes.” It depends generally on the speed of which I am dropping.

      2 years ago Log in to Reply
    29. Amanda Barras

      Sometimes I can keep on trucking down to the 40s, self treat and keep going on about my day. Other times I feel terrible, super lethargic and irritable and it stops me in my tracks.

      1
      2 years ago Log in to Reply
    30. Donna Condi

      I always feel it but that doesn’t happen until I hit about 42.

      2 years ago Log in to Reply
    31. George Lovelace

      I am surprised sometimes by the Dexcom warning but in combination with Tandem CIQ I have about eliminated All Hypos even with a 5.4 A1c

      2 years ago Log in to Reply
    32. Bonnie Lundblom

      Yes and I’m thankful for having my Dexcom.

      2 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]