Do you have celiac disease in addition to T1D?

Activity
- 3 hours, 4 minutes ago
  
  kilupx likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  I don't have a choice. I'm on the Tandem X2 pump, with Control IQ software. It is automatically programmed for a target range of 110. If I had a choice, I would put it on 100.
- 3 hours, 5 minutes ago
  
  kilupx likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  My alarm range is 70 - 180.
- 3 hours, 31 minutes ago
  
  Anita Stokar likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  The whole "target" question is a mess. I think most of us here (T1D people who are proactive etc) define "target" as where we want to be after a meal or correction bolus has done it's job. Pump mfr's (and many Endo's) define "target" like they define an A1C goal: averaging 110 over time. Lots of "discussions" (notice the quotes) with my Endo about my targets (I don't accept the "standard goal" of 70-180, I prefer aiming for 70-140). So so answer today's question, my alert ranges are 70 and 120 for high (I correct if I have no IOB, but may have food on board). My target bg (post bolus) is 80-90.
- 5 hours, 31 minutes ago
  
  Fabio Gobeth likes your comment at
  When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
  They don't call people with MS "sclerotics". In my career (first response) I interacted with lots of people in crisis, I tried to remember to ask if they were "dealing with alcoholism", "do you have schizophrenia" , that sort of language.
- 5 hours, 32 minutes ago
  
  Fabio Gobeth likes your comment at
  When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
  I avoid the word ‘diabetic’. It feels like a label. There are more things that define me than being a ‘diabetic’.
- 7 hours, 40 minutes ago
  
  Vicki Andersen likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  My alarm range is 70 - 180.
- 7 hours, 54 minutes ago
  
  Julianne likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  My range is 70 to 150
- 8 hours, 38 minutes ago
  
  Janis Senungetuk likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  I remember "injecting" an orange as a trial.
- 9 hours, 2 minutes ago
  
  Janis Senungetuk likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  Charles, I have the exact same problem. I found a guy on Etsy up in Canada that made a 3d printed fixture that helps. It's not 100% but it works most times. The needle on the stringe has a lot of variablity that may require moving into a place on the white dot to get it to fill the cartridge. I am only suggesting it. Your milage may vary. https://www.etsy.com/listing/1177982431/exakt-tool-for-tandem-tslim-insulin
- 9 hours, 3 minutes ago
  
  Janis Senungetuk likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  I wore a saline trial Tandem and a saline trial Omnipod when I was switching from a Medtronic 521 to a new pump. I chose Tandem and have been a very satisfied Tandem pump user since 2012.
- 9 hours, 43 minutes ago
  
  Anthony Harder likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  My alarm range is 70 - 180.
- 9 hours, 43 minutes ago
  
  Anthony Harder likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  I don't have a choice. I'm on the Tandem X2 pump, with Control IQ software. It is automatically programmed for a target range of 110. If I had a choice, I would put it on 100.
- 10 hours, 20 minutes ago
  
  Marty likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  I don't have a choice. I'm on the Tandem X2 pump, with Control IQ software. It is automatically programmed for a target range of 110. If I had a choice, I would put it on 100.
- 10 hours, 20 minutes ago
  
  Kathy Hanavan likes your comment at
  If you’re on an insulin pump, what is your glucose target range?
  I don't have a choice. I'm on the Tandem X2 pump, with Control IQ software. It is automatically programmed for a target range of 110. If I had a choice, I would put it on 100.
- 21 hours, 56 minutes ago
  
  Bekki Weston likes your comment at
  When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
  When I'm told what I can eat or not eat. Usually not eat.
- 21 hours, 57 minutes ago
  
  Bekki Weston likes your comment at
  If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
  I apply it as soon as I remember. My long-acting insulin dose is already divided into 2 doses.
- 1 day, 9 hours ago
  
  eherban1 likes your comment at
  If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
  taking Tresiba helps since it lasts more than 24 hours. it depends when I figure it out. if it's before 10 am, I just take it as normal.
- 1 day, 16 hours ago
  
  Patricia Dalrymple likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  I never knew about a saline trial, My first four insulin pumps were Medtronic. When it was time for a new insulin pump I asked what else was out there on the market. That's when I was introduce to Tandem. I am glad that I made the switch. My only problem is using a syringe to put the insulin in the reservoir. I have low vision and Essential Tremors which make the process challenging at times. Other than small issue it's is great.
- 2 days, 3 hours ago
  
  maria prel likes your comment at
  When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
  No, it is just an opportunity for me to teach them a little about diabetes. I don't think most people are trying to be mean, they are just uneducated.
- 2 days, 3 hours ago
  
  maria prel likes your comment at
  When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
  It is more about lack of understanding of diabetes management and attitude that accompanies it that bothers me the most. A friend was critical of someone who was just giving themselves (“shooting up more”) insulin because they wanted to eat something that “obviously” had carbs or sugar in it. His attitude was with derision because he didn’t understand. To him, the person was guilty of something for just giving himself more insulin to cover the carbs. It is the judgement without knowledge that bothers me the most.
- 2 days, 3 hours ago
  
  maria prel likes your comment at
  When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
  1. You can’t have that! You’re diabetic. 2. Do you need some orange juice?
- 2 days, 6 hours ago
  
  Dennis Dacey likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  I remember "injecting" an orange as a trial.
- 2 days, 6 hours ago
  
  Dennis Dacey likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  I never knew about a saline trial, My first four insulin pumps were Medtronic. When it was time for a new insulin pump I asked what else was out there on the market. That's when I was introduce to Tandem. I am glad that I made the switch. My only problem is using a syringe to put the insulin in the reservoir. I have low vision and Essential Tremors which make the process challenging at times. Other than small issue it's is great.
- 2 days, 6 hours ago
  
  Dennis Dacey likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  Funny how using saline would influence a decision. Yes, I understand the comfort part of it, but having it keep you in range would be an important factor in choosing a pump. You would actually need insulin to get that info.
- 2 days, 7 hours ago
  
  TEH likes your comment at
  Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
  I wore a saline trial Tandem and a saline trial Omnipod when I was switching from a Medtronic 521 to a new pump. I chose Tandem and have been a very satisfied Tandem pump user since 2012.
Clear All

Do you have celiac disease in addition to T1D?

For insulin pump users: What was the format of your most recent pump training?

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

18 Comments

Molly Jones

I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.

3 years ago Log in to Reply
1. rick phillips
  
  That is tough when the dog has celiac. God forbid they buy a parrot.
  
  1
  
  3 years ago Log in to Reply
Natalie Daley

Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma

3 years ago Log in to Reply
Lawrence S.

Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
I find this to be more restricting than diabetes. It has been devestating for me.

2

3 years ago Log in to Reply
Christine Gran

No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.

1

3 years ago Log in to Reply
ELYSSE HELLER

I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.

3

3 years ago Log in to Reply
1. AnitaS
  
  Never heard of that one!
  
  1
  
  3 years ago Log in to Reply
Karen Newe

Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.

3 years ago Log in to Reply
Jan Brooks

I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.

3 years ago Log in to Reply
Lynn Smith

I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.

3 years ago Log in to Reply
Mary Ann Sayers

No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.

3 years ago Log in to Reply
Tina Roberts

No. Not that I’m aware of.

3 years ago Log in to Reply
Margaret Moscrop

No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
Of the three she found ceiliac disease the most difficult.

3 years ago Log in to Reply
Maurine Bowser

Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?

3 years ago Log in to Reply
Jneticdiabetic

I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.

3 years ago Log in to Reply
Kristine Warmecke

No and I was recently tested for it, again.

3 years ago Log in to Reply
Wanacure

To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.

3 years ago Log in to Reply
Kelly Wilhelm

I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…

3 years ago Log in to Reply