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    • 4 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 6 hours, 18 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 6 hours, 20 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 6 hours, 21 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 7 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I get the 'you can't eat that, can you?' comments when friends see me eat a lot of carbs or have a nice dessert. I remind them that as long as I have insulin, I can eat whatever I want.
    • 7 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 7 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 10 hours, 53 minutes ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like most of the above comments, it's more of a question. The statements have come in situations where I'm not actually eating something...like someone saying, "Oh, it must be hard to not be able to eat desserts!"
    • 10 hours, 53 minutes ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 10 hours, 54 minutes ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 12 hours, 6 minutes ago
      kristina blake likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 12 hours, 30 minutes ago
      Mary Coleman likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 32 minutes ago
      Mary Coleman likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 12 hours, 43 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 12 hours, 43 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes and it is really annoying especially when they "You shouldn't eat that - you're a diabetic" and it's even more annoying and irritating when it is being said by a person in a healthcare profession. I can honestly say from many years of experience as a PWTID and as a RN that hardly ANYONE in the general public or in the general medical field says "because you live with diabetes" when referring to a PWD or when they admonish someone for "being diabetic" . It is a label that doesn't acknowledge the person. As I have stated before in other posts, are people who live with cancer called "canceretics"?
    • 12 hours, 44 minutes ago
      John Barbuto likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 13 hours ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like most of the above comments, it's more of a question. The statements have come in situations where I'm not actually eating something...like someone saying, "Oh, it must be hard to not be able to eat desserts!"
    • 13 hours, 1 minute ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like others here, it's more of "Can you eat . . .?" than "You shouldn't eat . . .!" Nonetheless, it comes across the same way.
    • 13 hours, 2 minutes ago
      Anthony Harder likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 14 hours, 13 minutes ago
      Steve Rumble likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like others here, it's more of "Can you eat . . .?" than "You shouldn't eat . . .!" Nonetheless, it comes across the same way.
    • 14 hours, 13 minutes ago
      Steve Rumble likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 15 hours, 37 minutes ago
      mojoseje likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      This is actually one of my biggest pet peeves. People who say, "Are you sure you can/should eat that?" Excuse me, but I think I know how to take care of myself and my diabetes better than you ever could. Thankfully, this does not happen much anymore, but years ago, it was a common refrain...
    • 1 day, 3 hours ago
      Neha Shah likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 5 hours ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      My grandma told me u could never have kid. I had two successful pregnancies.
    • 1 day, 5 hours ago
      Amanda Ratliff likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Oh my goodness… yes! As a child I was often reminded of my limitations because of diabetes. I’m hopeful that those misconceptions about T1D have changed over the decades.
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Molly Jones

      I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.

      4 years ago Log in to Reply
      1. rick phillips

        That is tough when the dog has celiac. God forbid they buy a parrot.

        1
        4 years ago Log in to Reply
    2. Natalie Daley

      Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma

      4 years ago Log in to Reply
    3. Lawrence S.

      Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
      I find this to be more restricting than diabetes. It has been devestating for me.

      2
      4 years ago Log in to Reply
    4. Christine Gran

      No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.

      1
      4 years ago Log in to Reply
    5. ELYSSE HELLER

      I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.

      3
      4 years ago Log in to Reply
      1. AnitaS

        Never heard of that one!

        1
        4 years ago Log in to Reply
    6. Karen Newe

      Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.

      4 years ago Log in to Reply
    7. Jan Brooks

      I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.

      4 years ago Log in to Reply
    8. Lynn Smith

      I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.

      4 years ago Log in to Reply
    9. Mary Ann Sayers

      No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.

      4 years ago Log in to Reply
    10. Tina Roberts

      No. Not that I’m aware of.

      4 years ago Log in to Reply
    11. Margaret Moscrop

      No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
      Of the three she found ceiliac disease the most difficult.

      4 years ago Log in to Reply
    12. Maurine Bowser

      Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?

      4 years ago Log in to Reply
    13. Jneticdiabetic

      I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      No and I was recently tested for it, again.

      4 years ago Log in to Reply
    15. Wanacure

      To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.

      4 years ago Log in to Reply
    16. Kelly Wilhelm

      I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…

      4 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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