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  • Activity
    • 16 hours, 28 minutes ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 16 hours, 29 minutes ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 20 hours, 50 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 20 hours, 51 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 21 hours, 9 minutes ago
      Trina Blake likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I am curious. Do you routinely check the control glucose solution to be sure the meter is accurate?
    • 21 hours, 57 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 9 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 22 hours, 17 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 22 hours, 18 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 22 hours, 19 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 22 hours, 23 minutes ago
      Marthaeg likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 45 minutes ago
      Mike S likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 50 minutes ago
      KCR likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 51 minutes ago
      Jeff Marvel likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 1 day ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I use a CGM and my BG went over 180 seven times. Not unusual for BG go to 200+ after eating, then comes down. Yesterday and today my average BG was 150.
    • 1 day, 17 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 1 day, 17 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 1 day, 18 hours ago
      Lindsey Whitnell likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My "high" alarm is 130. When I hit that I consider: when I ate; could I have screwed up the bolus; what am I doing or will be doing; when I'll eat next. Rarely go over 150-160, by reacting and preventing highs found I actually use less insulin than just correct when it peaks....could never do this without a CGM I'm comfortable with, although with pens and an unmoving basel more fun (can't make fast adjustments for food, stress, heat, or activity). So the past several days zero over 180, just a few over 150.
    • 1 day, 19 hours ago
      Janis Senungetuk likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 20 hours ago
      Bruce Schnitzler likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      I had the same thing happen. I usually go below about 3 times but yesterday not at all. Amazing!
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      It's been an unusual 24 hours for me and I haven't gone below 70 at all. (If I'd a been asked last week, totally different answer!) :p But, I'm doing really great today. So... Yay! :D
    • 2 days, 9 hours ago
      ConnieT1D62 likes your comment at
      The food we choose to eat as people with T1D is so personal, and each food impacts every person differently. What foods do you prefer to eat for your first meal of the day? Share what works for you in the comments!
      I follow my wife’s old adage, “Eat breakfast like a king, lunch like a queen, and dinner like a pauper.” And in a very king-like fashion and since I am retired, I do it most mornings in a very leisurely 3 or 4 fashion. The best breakfasts, by far, are those you have with delightful conversationalists with people of wide-ranging interests. I start with 2 or 3 cups of strong, dark-roast black coffee, nursed liked an expensive cocktail rather than gulped. Then come berries—raspberries, black berries, blue berries, and a complete box of strawberries, followed by protein potions of turkey peperoni slices or an egg or two. The cereal consumed is a mix of three-Uncle Sam’s mixed with Grape Nuts mixed with All Bran. Either milk or yogurt is used to top the cereal. I know not the calories, but the carbs I can count down to the first decimal point. And decidedly, the meal’s main attributes are the time spent and the conversations.
    • 2 days, 10 hours ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
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    Sarah Howard
    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. Molly Jones

      I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.

      11 months ago Log in to Reply
      1. rick phillips

        That is tough when the dog has celiac. God forbid they buy a parrot.

        1
        11 months ago Log in to Reply
    2. Natalie Daley

      Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma

      11 months ago Log in to Reply
    3. Lawrence S.

      Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
      I find this to be more restricting than diabetes. It has been devestating for me.

      2
      11 months ago Log in to Reply
    4. Christine Gran

      No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.

      1
      11 months ago Log in to Reply
    5. ELYSSE HELLER

      I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.

      3
      11 months ago Log in to Reply
      1. AnitaS

        Never heard of that one!

        1
        11 months ago Log in to Reply
    6. Karen Newe

      Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.

      11 months ago Log in to Reply
    7. Jan Brooks

      I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.

      11 months ago Log in to Reply
    8. Lynn Smith

      I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.

      11 months ago Log in to Reply
    9. Mary Ann Sayers

      No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.

      11 months ago Log in to Reply
    10. Tina Roberts

      No. Not that I’m aware of.

      11 months ago Log in to Reply
    11. Margaret Moscrop

      No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
      Of the three she found ceiliac disease the most difficult.

      11 months ago Log in to Reply
    12. Maurine Bowser

      Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?

      11 months ago Log in to Reply
    13. Jneticdiabetic

      I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.

      11 months ago Log in to Reply
    14. Kristine Warmecke

      No and I was recently tested for it, again.

      11 months ago Log in to Reply
    15. Wanacure

      To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.

      11 months ago Log in to Reply
    16. Kelly Wilhelm

      I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…

      11 months ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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