Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma
Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
I find this to be more restricting than diabetes. It has been devestating for me.
No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.
I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.
Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.
I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.
I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.
Mary Ann Sayers
No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.
No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
Of the three she found ceiliac disease the most difficult.
Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?
To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.
I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…
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I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.