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    • 14 hours, 37 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 38 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 29 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 56 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 9 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 1 minute ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 8 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 30 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 32 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 39 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 4 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    Do extremely high temperatures outside impact whether or not you refrigerate your insulin after it has been opened?

    Home > LC Polls > Do extremely high temperatures outside impact whether or not you refrigerate your insulin after it has been opened?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    54 Comments

    1. Tim Kirchgessner

      Always keep it refrigerated even before open

      2
      8 months ago Log in to Reply
    2. Thomas Cline

      I wouldn’t refrigerate the insulin I’m using, but I certainly would make sure it doesn’t get above 86F — either by simply not going outside with it when it is superhot (we have parts of our house that are always below 86F), or, if I had to go out (like on a vacation) I’d use a Frio pack — but that’s not refrigeration per se.

      1
      8 months ago Log in to Reply
    3. Molly Jones

      Extremely high temps are rare for me and hopefully continue to be so.
      I live in a temperate zone, but don’t want to worry about the expiration of the insulin and keep it in the fridge while using it.
      I learned from tandem that cold insulin can possibly damage their cartridges and so prepare a syringe a day in advance.

      8 months ago Log in to Reply
    4. Janice Bohn

      I have a box in the refrigerator where I keep all my insulin.

      8 months ago Log in to Reply
    5. alice locke

      I always refrigerate my rapid insulin. I keep my long acting at room temperature.

      8 months ago Log in to Reply
    6. Carolann Hunt

      The house has AC so the insulin is fine at room temp

      1
      8 months ago Log in to Reply
    7. Kimberly Starkey

      I will also place my insulin in a somewhat chilled cooler if I lock up my car while shopping in a location where the car will get hot, and I know I will need a new reservoir that day.

      8 months ago Log in to Reply
    8. Kevin McCue

      So where was the option for always refrigerate insulin that’s was my other choice not presented

      1
      8 months ago Log in to Reply
    9. GLORIA MILLER

      While at home it is stored in my refrigerator simply because I get about a year’s supply at one time. When I traveling, it is kept at whatever temperature I am located in at the time. I know some will carry a cold pack while traveling but I never have.

      8 months ago Log in to Reply
    10. TEH

      When I do car trips I keep my open and/or unopened insulin in a Medicool protector mini-cooler, or in a tray away from the ice in a regular cooler. I keep all my unopened insulin in the frig at home. We usually vacation with our RV that has a frig on line.

      8 months ago Log in to Reply
    11. Trisha Oldenkamp

      I never refrigerate it but I keep the vial in a small Frio bag and I keep it in my purse.

      8 months ago Log in to Reply
    12. Lawrence S.

      I am confused by the wording of the question. I always keep my vials of insulin in the refrigerator, whether opened or not. When I use a cartridge of insulin in my pump, it goes where I go, inside or outside. I still don’t understand what you are asking?

      2
      8 months ago Log in to Reply
      1. Sherrie Johnson

        I agree some questions are confusing the way they are worded

        8 months ago Log in to Reply
      2. AnitaS

        I am taking for granted that they are are not talking about pump cartridges, just vials. Many people just put in their explanation whether they are talking about opened vials or vials that have not been opened yet. I think people put explanations since they are stating how they have interpreted the questions.

        8 months ago Log in to Reply
      3. Lawrence S.

        Thank you Anita and Sherrie.

        8 months ago Log in to Reply
    13. Gerald Oefelein

      I do not refrigerate opened vials of insulin at normal room temperature, but I do pack in a cooler when traveling. I store unopened vials in our refrigerator.

      2
      8 months ago Log in to Reply
    14. Marty

      I put my whole pump in a cooler when I take it off and lock it in the car at the beach. In the past, I’ve left opened vials on ice in hotel rooms that lack air conditioning in hot places. Otherwise, I leave opened vials at room temperature.

      8 months ago Log in to Reply
    15. Susan Gordon

      I receive 4 bottles at a time and I refrigerate right away. They stay in the fridge as I use them.

      1
      8 months ago Log in to Reply
    16. Tom Caesar

      Always keep my insulin refrigerated, opened or not

      1
      8 months ago Log in to Reply
    17. Bruce Schnitzler

      I always refrigerate Lantus because a vial lasts over a month. I do not refrigerate Novolog pens since it lasts only a few days and Is in an environment with air conditioning. If auto traveling, I use a small cooler.

      8 months ago Log in to Reply
    18. Jane Cerullo

      I am on MDI and I keep pens in fridge. If going out I use a Frio pouch. I live in the desert. Makes me feel more secure I guess that insulin won’t overheat. It’s been 114 degrees. Won’t worry so much when it gets cooler.

      8 months ago Log in to Reply
    19. Jim Cobbe

      I never refrigerate it in the US, but I have on occasion in the past when traveling in the tropics in countries with unreliable air conditioning. Both in the US and overseas when traveling in high temp areas I would use a gel pak in my kit to keep the insulin cool during the day and refreeze the gel pak each night in the hotel room fridge (sometimes would involve asking the staff to put in a kitchen freezer, which was never refused once the use was understood — even in some fairly dodgy lodgings!)

      8 months ago Log in to Reply
    20. mbulzomi@optonline.net

      As I checked off, “I always Refrigerate my Insulin”, except when I am Traveling. However, I have not been to a hotel that doesn’t have a Refrigerator. I use a FRIO cooling pack in transit; it hasn’t failed me yet. I’ve traveled all over the world.

      3
      8 months ago Log in to Reply
      1. mbulzomi@optonline.net

        May I add a comment. If the Hotel does not have a Refrigerator, I will get Ice cubes and put them into the ice receptacle and put the insulin into a glass and place it into the ice. When home, my nine vials of NovoLog goes into the refer. until I used them.

        8 months ago Log in to Reply
    21. Marla Peaslee

      When traveling with extreme temperatures I use insulated insulin packs.

      8 months ago Log in to Reply
    22. Russ Spittler

      I do not refrigerate insulin/Symlin pens “in use” while I’m indoors. As a Type 1, I go back and forth between the beach in CA and the desert in Las Vegas, which means sharp outdoor temperature extremes going from say 75 to 115 degrees in a single day, or consistent outdoor temps over 100 degrees through the day (Vegas). Using insulin and Symlin pens, I carry a tote bag with frozen gel packs (as necessary) in which I seek to keep the temperature IN THE BAG below the max tolerable by the pens in the bag. I do not have the gel packs touch the pens directly. Serves to maintain a degree of continuity between in-door and outdoor temps the pens are exposed to while remaining under the pens’ maximum tolerable temps. Works for me.

      1
      8 months ago Log in to Reply
    23. Ernie Richmann

      I have air conditioning at home so I do not usually refrigerate insulin after opening. When traveling during warm weather, I keep insulin in a thermos with ice.

      8 months ago Log in to Reply
    24. Steve Rumble

      the temperature is not an issue. I keep my lantus in the refrigerator because I always take my lantus in the kitchen and the refrigerator is convenient. I carry my novolog with me so it is not refrigerated.

      8 months ago Log in to Reply
    25. Mary Ann Sayers

      I have experienced a heart wave like this one. But I live in an air conditioned rest home and have not gone outside during it’s impact on my area of Massachusetts, nevermind the country!
      The answer is no, I do not refrigerate the insulin after opening.

      8 months ago Log in to Reply
    26. Amanda Barras

      During the summer if I am traveling I always keep my insulin with me or in the hotel to keep it cool and never leave it in car. But just at home, a/c keeps it cool and it’s a non-issue. Power outage during summer heat would be an exception.

      8 months ago Log in to Reply
    27. Sue Compo

      I use a frio for my opened pens
      I refrigerate unopened viles

      1
      8 months ago Log in to Reply
    28. Sue Herflicker

      I always keep my insulin out of the refrigerator after opening. However in the summer at the beach or pool I always put it in a cooler so it doesn’t cook. Years ago when my boys were younger and we went to Florida often to stay with friends their insulin in their pumps would go bad when playing outside in the heat.

      8 months ago Log in to Reply
    29. Ms Cris

      I keep them all refrigerated or in a cooler at all times, learned the hard way that even at steady room temp I notice early, minute deterioration.
      When it’s time for a new cartridge, I prepare a syringe an hour beforehand, allowing it to come to room temp before filling the cartridge.
      I use a Frio wallet for my pump, works great.

      8 months ago Log in to Reply
    30. Carol Meares

      I keep all insulin in a refrigerator except when traveling in which case it is in a Frio container if is opened. It is with a frozen cooler block in my suitcase when traveling. I always keep some extra insulin with me in Frio container.

      8 months ago Log in to Reply
    31. Mick Martin

      I VERY RARELY refrigerate insulin after it has been opened.

      It’s not often that we receive temperatures in the UK that warrant this behaviour [behavior].

      8 months ago Log in to Reply
    32. Bonnie Lundblom

      Air-conditioned house so the NovoLog vial once opened stays at room temperature. I wish I knew how to protect the insulin in my Tslim pump when I’m outside doing yard work and the temperature is in the 90’s!

      8 months ago Log in to Reply
      1. Bonnie Lundblom

        All unopened vials are in the refrigerator.

        8 months ago Log in to Reply
    33. Janis Senungetuk

      I keep all of my Novolog in the refrigerator, including what I’m currently using.

      1
      8 months ago Log in to Reply
    34. Julie Pierce

      I always keep my insulin refrigerated

      1
      8 months ago Log in to Reply
    35. kflying1@yahoo.com

      I will put opened insulin in a thermal pouch with something cold when the air temp get’s above 80.

      8 months ago Log in to Reply
    36. AnitaS

      I don’t normally refrigerate my insulin after opening as after I fill my pump cartridge, I usually just put my insulin back into my closet. If I need to take insulin with me, such as on vacation, I do carry my insulin vials in insulin holders that keep my insulin cooler.

      8 months ago Log in to Reply
    37. Ahh Life

      Never refrigerate the bottle being used and one extra. Both are in emergency kit in the closet next to the extra bathroom. Others are all refrigerated.

      It is known to be a bit hot in Florida. In fact, we skipped global warming and went straight to global heating many years ago. Just wish you guys in the other 49 states wouldn’t compete so hard to out do us. And toFahrenheit rub salt in our wound, you are doing it by 15 or 20 degrees fahrenheit. ( ͡> ͜ʖ͡< )

      1
      8 months ago Log in to Reply
    38. Denise Yonchek

      I don’t refrigerate after opening a new bottle, but if extremely hot make sure it is in a cool place

      1
      8 months ago Log in to Reply
    39. Jneticdiabetic

      I usually keep my Humalog insulin in the fridge. When I get down to the last bits (~20u) that are not worth drawing up for my pump, I’ll carry that vial in my kit with syringes at room temp in case of emergencies. I rarely need, so have had vials in my bag unrefrigerated for months and have been happy to find they still worked.

      1
      8 months ago Log in to Reply
    40. Steve Hornig

      I keep opened bottles at room temp. In 35 years as a type 1, I’ve never noticed insulin being affected by heat. Can anyone point me to an authoritative article on degradation of insulin due to heat? I’d love to read one. Thanks.

      8 months ago Log in to Reply
    41. Angela Naccari

      I answered “other”. I keep my insulin in the refrigerator until I open a vial. Then it kept in container with other supplies. When I travel in the car for a long trip I pack opened and and unopened vials with a cold pack in a thermal lunch bag.

      1
      8 months ago Log in to Reply
    42. ConnieT1D62

      I keep the insulin bottle currently in use in my pump change supplies carryall that lives in a hallway closet. Bottles not in use are refrigerated. When traveling away from home i carry insulin supplies in a Frio pack.

      1
      8 months ago Log in to Reply
    43. RegMunro

      Some years ago during a trip I had to leave all my insulin supplies, short & long acting, in the trunk of a car for 15 hours of over 100 degree heat. Despite our fears the insulins were, or appeared to be, totally unaffected! Being in Panama City we’re doubted our ability to replace my insulin based on my Cape Toen prescription that I didn’t have with me

      8 months ago Log in to Reply
    44. vbaum1956

      I keep the unopened bottles in the refrig but usually the opened bottle I keep in the bathroom, unless it is very warm outside.

      8 months ago Log in to Reply
    45. Bea Anderson

      I keep the opened vial with me. I don’t leave it in hot car, but hiking, biking it comes along. Rarely I’ll use a cool pack.

      8 months ago Log in to Reply
    46. Tom Rintelmann

      Living in Texas and being an active individual, I must pack a small cooler with ice packs and cushioning to keep my pens from getting too cold.

      1
      8 months ago Log in to Reply
    47. Brad Larson

      Have used a product called Frio (?) a pouch containing crystals that swell when wetted, then by dehydrating slowly uses evaporative cooling. Always in warm months, rarely during cool months. TSA has never pulled me up for the “gel,” in X-ray. It always keeps the insulin cool. I heard (maybe mistakenly) that once taken out of refrigeration, insulin pens should not be refrigerated again.

      8 months ago Log in to Reply
    48. Chris Deutsch

      The recommendation is to keep insulin refrigerated until it is opened, then to use it within 1 month at room temperature. I label the open vial and pens for expiration in 28-30 days. My vials last 25 days; I carry insulin pens as backup to my pump, and am required to waste most of each syringe since my tandem pump seldom malfunctions. I always regret wasting the insulin.

      8 months ago Log in to Reply
    49. Cheryl Seibert

      I’ve kept ALL my insulin vials in the fridge for the past 56 years. I carry a vial when away from home, either on ice pack in high temps or in an insulated pouch if I’m going to be inside out of the hot temps.

      8 months ago Log in to Reply

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