Did you add, remove, or change T1D devices in 2021? Select all that apply.

Activity
- 14 hours, 55 minutes ago
  
  Jeanne McMillan-Olson likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
- 14 hours, 56 minutes ago
  
  Jeanne McMillan-Olson likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
- 15 hours, 47 minutes ago
  
  Jan Masty likes your comment at
  Have you (or your loved one with T1D) been diagnosed with retinopathy?
  No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
- 16 hours, 14 minutes ago
  
  mojoseje likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
- 16 hours, 27 minutes ago
  
  KarenM6 likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  It was so long ago, I don't remember...
- 17 hours, 19 minutes ago
  
  Janis Senungetuk likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
- 17 hours, 26 minutes ago
  
  Judy Hampton likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
- 17 hours, 48 minutes ago
  
  Patricia Dalrymple likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
- 17 hours, 50 minutes ago
  
  cynthia jaworski likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
- 17 hours, 57 minutes ago
  
  Anneyun likes your comment at
  If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
  I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
- 19 hours, 22 minutes ago
  
  Joan Fray likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  It was so long ago, I don't remember...
- 1 day, 10 hours ago
  
  TS likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  InsulinPumpers.com does a great job of distributing supplies to those in need.
- 1 day, 15 hours ago
  
  jo likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
- 1 day, 15 hours ago
  
  jo likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  InsulinPumpers.com does a great job of distributing supplies to those in need.
- 1 day, 15 hours ago
  
  KarenM6 likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
- 1 day, 15 hours ago
  
  KarenM6 likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I'm still looking for someone to give them to.
- 1 day, 15 hours ago
  
  KarenM6 likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I would love to learn of places to give/donate supplies!
- 1 day, 15 hours ago
  
  KarenM6 likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  My other was gave them to the Endocrinologist office to give to people who needed them
- 1 day, 16 hours ago
  
  Trina Blake likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
- 1 day, 17 hours ago
  
  Amanda Barras likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
- 1 day, 17 hours ago
  
  Richard Wiener likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I would love to learn of places to give/donate supplies!
- 1 day, 18 hours ago
  
  Janis Senungetuk likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
- 1 day, 18 hours ago
  
  pru barry likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
- 1 day, 18 hours ago
  
  pru barry likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
- 1 day, 18 hours ago
  
  Sue Martin likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
Clear All

Did you add, remove, or change T1D devices in 2021? Select all that apply.

Do you have hypoglycemia unawareness?

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

31 Comments

Louise Jesserer

Added a Dexcom and Tandem t-slim with IQ control! Both great devices…

1 year ago Log in to Reply
Lisa Sierra

I would switch to a pump and cgm that are compatible, but can’t and since they had to switch out my recalled medtronic pump, they didn’t upgrade, just sent me a refurbished crappy pump and added more time since it had been replaced. No upgrade.

1

1 year ago Log in to Reply
1. Lisa Sierra
  
  Now I can’t upgrade and get compatible devices. I only need to change one device, but no.
  
  1 year ago Log in to Reply
Antsy

I’ve been waiting for the newest Medtronic pump to be released (rumor was it would come out by the end of the year, hoping my “expired” 670G doesn’t fail completely. If it is a big enough improvement over the current system, I’ll stick with Medtronic, otherwise I’m jumping ship to the Dexcom/Tandem combo.

1 year ago Log in to Reply
1. Joan Fray
  
  Tandem with Control IQ changed my life. Sometimes I even sleep through the night! Exercise is now possible for me too.
  
  3
  
  1 year ago Log in to Reply
2. Steven Gill
  
  I got the 770G system this past fall, 100% the same as the previous with the exception of the app get can utilize a cell phone to reach contacts it there are concerns.
  
  While I read the complaints and concerns with the MEDTRONIC system it does well. Especially since my insurance has no trouble with coverage.
  
  In answer to the poll: I stopped using the Guardian3 sensor three years ago because of the cost. Inherited an old dog with congestive heart failure, the option was to forego her meds ($250 a month) or the sensor. She passed away a happy deaf, half blind, old lady at 16 this past spring. Waiting for the upgrades MEDTRONIC’s rep contacted me, and thankfully I’m now on their patient assistance program cutting my “after insurance” costs. BUT Motorola phones don’t work the app, so no idea on that yet.
  
  1
  
  1 year ago Log in to Reply
3. Antsy
  
  Steven, I’m sorry about your dog, good for you for you for taking such good care of her. As for the 770g, seeing my numbers on my phone is not something I need. Now if my BG could pop up on my dashboard screen when I’m driving and my pump starts buzzing, I’d stick with Medtronic for another 4+ years.
  
  1 year ago Log in to Reply
George Lovelace

I will Never give up my Tandem X2 and hope the Dexcom G6 will upgrade to the G7 but the G6 works just Great now

1 year ago Log in to Reply
Lawrence S.

I Kept the same Tandem X2 pump and Dexcom G6 CGM. However, I did buy a new telephone, Samsung A1 G5 because it was supposed to receive the Dexcom G6 sensor signal. I downloaded the G6 app and used it for about 2 month. It did not work correctly, and ended up messing up my transmitters, sensors, and had continuously and repeatedly losing the CGM signals. The phone was a waste of money.

1

1 year ago Log in to Reply
Andrew Stewart

I changed from the Omnipod to Tandem tslim with Control-IQ. My only complaint is the tubes but I’m getting used to it.

1 year ago Log in to Reply
Meghan Larson

I took a pump break and started using the InPen (which I did not see listed as an option to select!).

1 year ago Log in to Reply
1. AnitaS
  
  I think your option would have been “stopped using a pump ?
  
  1 year ago Log in to Reply
Tom Caesar

Anxiously waiting until Jan 10 when I can apply for a Tandem to replace my five year old Medtronic. Hoping my numbers and piece of mind level out with the change.

1 year ago Log in to Reply
Tabatha Rush

Diagnosed in 2021

1 year ago Log in to Reply
Annie Wall

After 25 years pumping, I took a 2 year vacation and was MDI using the InPen. This last spring I ended my “vacation” and started using a Tandem pump with Control IQ, a game changer for sure!

1 year ago Log in to Reply
1. Tina Roberts
  
  How did you like the impen?
  
  1 year ago Log in to Reply
2. JoAnn Pinkowitz
  
  I would also like your impression of using the InPen please.
  
  1 year ago Log in to Reply
Jneticdiabetic

Switched from the Medtronic 670G pump/CGM to the Tandem Tslim pump and Dexcom G6 CGM in Nov. I was 98% within range yesterday (despite some residual holiday eating). A new all time best for me!

3

1 year ago Log in to Reply
1. AnitaS
  
  Good for you!
  
  2
  
  1 year ago Log in to Reply
Nicholas Argento

Stayed with Dexcom G6 and T-slim control IQ- which I love. I sleep better, with higher time in range, than ever before.

1

1 year ago Log in to Reply
Karen DeVeaux

I said I added a new CGM but it was actually a FreeStyle Libre.

1 year ago Log in to Reply
Jane Cerullo

Change from Medtronic to Omnipod. Because of insurance had to change from Dexcom to freestyle libre. Omnipod too expensive under Medicare so January first will switch back to MDI using insulin pens. Need a pump break.

1 year ago Log in to Reply
Janis Senungetuk

This year I continued using the Tandem t-slim X2 pump with Control-IQ app/Dexcom G6 CGM.

1 year ago Log in to Reply
Tina Roberts

I kept the same pump and cgm only because it’s still in warranty and my insurance won’t pay for a new one yet.

2

1 year ago Log in to Reply
Rick Martin

Switched from Tandem t-slim with IQ control to Afrezza (inhaled insulin). Much more time in range than on the pump!

1 year ago Log in to Reply
Vickie Baumgartner

Actually changed insulin pump and CGM models that Medtronic sent to me unannounced.

1 year ago Log in to Reply
1. Dave Akers
  
  Typical Medtronic’s! Pushers is why they are!
  
  1
  
  1 year ago Log in to Reply
Dave Akers

AND Completely left the meal time injectable marketplace. Thank you Inhaled Insulin!!! Would love to see a question here one day about inhaled insulin… it’s a thing now!

1 year ago Log in to Reply
LizB

I chose that I stayed with the same pump/CGM but realized I did pay for the Pathway upgrade from the Minimed 670g to 770g. But it is pretty much the same exact pump except now I can see the CGM readings on my phone. I’m still under warranty for another 10 months and am thinking of Tandem/Dexcom next year but cost will be a huge factor.

1

1 year ago Log in to Reply
Bonnie Lundblom

I remain on the Tslim pump and Dexcom CGM6. Does anyone know how long Medicare makes you wait to change CGM’s? I’m hoping the Dexcom CGM7 with the shorter cannula will be more accurate.

1 year ago Log in to Reply
PamK

I did a trial of a different brand pump, but ended up staying with the one I’ve been on for the past few years.

1 year ago Log in to Reply