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    • 47 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 1 hour, 51 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 2 hours, 39 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 2 hours, 39 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 3 hours, 50 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 3 hours, 50 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 5 hours, 9 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 2 days ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 3 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 2 days, 22 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 2 days, 23 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 3 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 3 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 4 days, 21 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 21 hours ago
      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 5 days ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 5 days ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 5 days ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Do your best to control your blood sugar but don't aim for perfection. That will never happen.
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    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?

    Home > LC Polls > At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Jen Farley

      I already see a therapist and psychiatrist, my endocrinologist is well aware.

      2
      3 years ago Log in to Reply
    2. Stephen Woodward

      Being diagnosed thirty years earlier would have beeb better than suffering all those year. The difference after starting treatment was amazing.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      I get a questionnaire about health and mental health before each visit. Also, My visit last week was on video. But, I still filled out my pre-visit questionnaire.

      3 years ago Log in to Reply
    4. Scott Rudolph

      They always ask me those questions verbally.

      3 years ago Log in to Reply
      1. KCR

        Me, too, plus discuss any concerns I bring to the appointment.

        3 years ago Log in to Reply
    5. Steve Rumble

      I filled out such a questionnaire on line prior to the appointment

      1
      3 years ago Log in to Reply
    6. Saraha

      Looks like the medical community needs to address mental health for their patients.

      1
      3 years ago Log in to Reply
      1. Dave Akers

        It’s not reimbursable, so the only ones that will take action are those that care about patients over profits for the Healthcare system.

        3 years ago Log in to Reply
    7. Karen Taylor

      No for my endo doc but I did have a questionnaire at my primary care facility that gave me that survey.

      2
      3 years ago Log in to Reply
      1. TEH

        I did too. It was part of my Medicare anual wellness check.

        2
        3 years ago Log in to Reply
    8. Mick Martin

      It’s been years since I was last asked to fill out a questionnaire on my Mental Health, and this was NOT by anyone employed within the Diabetes Centre, but someone who was from top management within the hospital. To be frank, if you don’t mind me changing my name for a second, I firmly believe it was a ‘ticking boxes’ exercise. i.e. to show that this was something that they do.

      3
      3 years ago Log in to Reply
      1. Kayci Marr

        That sucks to hear 🙁 and I can definitely see that happening. I have always been followed up with in my experiences and I wish, wherever you are, your healthcare providers would do the same with genuine care and follow through. I hope if** you do need help, then you reach out to a professional. Be well

        1
        3 years ago Log in to Reply
      2. Mick Martin

        @Kayci Marr,

        Bless you, ma’am.

        During my ‘working years’ I used to be a Social Worker and was in a position to ‘refer’ myself for appointments, none of which served any useful purpose. (I referred myself to see a psychologist and it was arranged for someone to visit me at home. Unfortunately, the person who visited me was already known to me on a professional level. She did ask if I wanted someone else to visit me instead of her good self, but I refused that option. The ‘homework’ she gave me to do sent my mind running back to my own Social Work training and what was required of assignments/essays so I simply wrote what I KNEW the psychologist wanted to ‘hear’.) We never actually got around to talking about what the REAL problem was.)

        3 years ago Log in to Reply
    9. Jeanne McMillan-Olson

      Not with my endo the last time, but I did with my last visit with my PCP.

      3 years ago Log in to Reply
      1. Tracy Jean

        Me too.

        1
        3 years ago Log in to Reply
    10. cynthia jaworski

      What is supposed to be asked?

      3 years ago Log in to Reply
    11. Kim Davis

      But it was a Tele-Health apt.

      3 years ago Log in to Reply
    12. Janis Senungetuk

      I completed a pre-appointment questionnaire on my MyChart account that asked mental health questions in addition to Covid symptom questions. The questionnaire is included in every pre-appointment confirmation response. if it isn’t answered on-line it has to be answered during appointment registration before seeing the provider.

      3 years ago Log in to Reply
    13. Jeff Balbirnie

      Gasping for breath, tears streaming uncontrollably from laughing so hard at the question.

      Not once in 50+ years, not once

      3
      3 years ago Log in to Reply
    14. Chris Albright

      Diabetic for 32 years and I have never had an endo ask me about my mental health. I do think they should since T1D can be ‘challenging’ over an extended length of time.

      3
      3 years ago Log in to Reply
    15. Tb-well

      Kind of. They ask 3 general mental health questions, nothing diabetes specific.

      3 years ago Log in to Reply
    16. mbulzomi@optonline.net

      I believe this is a new process, for me It’s not necessary. My doctor sits down, and we have a lengthy conversation on many subjects other than Diabetes. My Endo. is a HAM Radio operator, and I sat a Second Radio position in the US Navy, as an Anti-Submarine Warfare Crew member. I’m sure he senses my Mental Health.

      3 years ago Log in to Reply
    17. Steven Gill

      Of the 5 endocrinologists I’ve seen, during the med trial, (#2) and the last had such a form. I guess my curse of optimism the others just ask general questions, but diabetes to me is just a part.

      3 years ago Log in to Reply
    18. T1D4LongTime

      No, the doctor does a verbal questionnaire. This allows him to expand on any concerning answers.

      3 years ago Log in to Reply
    19. Andrea Hultman

      I have never had a T1D healthcare provider ask me to fill out a mental health questionnaire, and that’s sad.

      1
      3 years ago Log in to Reply

    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment? Cancel reply

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