Activity
- 4 hours, 25 minutes ago
  
  KarenM6 likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  80-200 Numbers and mathematics can be quite cruel. White blood count too high? BG too high? Or too low? Numbers and math alone fail and fail miserably at characterizing and personalizing the T1D condition. Just ask anyone who has too high or too low numbers. These numbers and ranges are guidelines or dams along a long meandering river. And as anybody in New Orleans can tell you, occasionally they fail.
- 6 hours ago
  
  KarenM6 likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  Always around 30 min. Adjusting pumps, asking questions, looking over Dexcom reports, figuring out changes, how I feel, what has changed, on and on. My doctor is a very detailed and thorough doctor I respect.
- 6 hours, 1 minute ago
  
  KarenM6 likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  Less than 10 min by choice. Nothing to talk about with stable labs, 95% time in range, and an A1c of 5.8.
- 6 hours, 10 minutes ago
  
  KarenM6 likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  I set warning at 180-200 not b/c that is what I want (I am between 100-140 about 70% of the time) but b/c even on vibrate my Dexcom wakes up my wife if it gets high at night and any time it warns she gets more anxious than I) so though I monitor closely and walk or workout or bolus if it goes high, I can't get low warnings at every 60, 70 or 80 or any time it is above 140, where I would set it if I lived alone...in a cave... w/ nobody who worries about me. : )
- 6 hours, 12 minutes ago
  
  KarenM6 likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  I use the Dexcom default of 70-180 for tracking. BUT, I use 80-150 for daytime alarms. Nighttime alarms I have left at 70-180. Someday I hope to reduce my TIR tracking to 80-160, but my goal is to consistently stay in 70-180 first.
- 6 hours, 12 minutes ago
  
  KarenM6 likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  I use 180 for “time in range reports” as that is what my endo uses but I have my Dexcom high alarm set at 150 so I can perhaps do something about it before it climbs to 180.
- 6 hours, 35 minutes ago
  
  beth nelson likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  My "High" range is set at 180 mmol/dl. It is not a "range"! Not sure why this is worded this way!
- 7 hours, 27 minutes ago
  
  Gerald Oefelein likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  Isn't the recommended high threshold 180 for time-in-range? I would have thought that everyone would use that. However, I just read an article on another Diabetes forum about "Time in Tight Range" which is 70-140. An endocrinologist recommended that our TITR be 50% or greater. I checked and I am at 84% TIR and about 55% TITR. Gives light to today's question.
- 7 hours, 27 minutes ago
  
  Gerald Oefelein likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  The article is at diaTribe and here is the link: https://diatribe.org/time-tight-range-new-diabetes-goal?omhide=true
- 8 hours, 45 minutes ago
  
  lis be likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  I set the high at 150 and then decide if I need to give a correction bolus or to do a quick exercise or not.
- 9 hours, 38 minutes ago
  
  William Bennett likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  Isn't the recommended high threshold 180 for time-in-range? I would have thought that everyone would use that. However, I just read an article on another Diabetes forum about "Time in Tight Range" which is 70-140. An endocrinologist recommended that our TITR be 50% or greater. I checked and I am at 84% TIR and about 55% TITR. Gives light to today's question.
- 10 hours, 21 minutes ago
  
  Becky Cain likes your comment at
  If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.
  I use the Dexcom default of 70-180 for tracking. BUT, I use 80-150 for daytime alarms. Nighttime alarms I have left at 70-180. Someday I hope to reduce my TIR tracking to 80-160, but my goal is to consistently stay in 70-180 first.
- 10 hours, 26 minutes ago
  
  Kristine Warmecke likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  My provider spends at least 40 minutes with me. I never feel rushed.
- 10 hours, 58 minutes ago
  
  Jeff Marvel likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
- 12 hours, 5 minutes ago
  
  Lawrence S. likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I just switched from Medtronic 770g to Tandem/Dexcom and I was amazed at how many Medtronic supplies I had when I was trying to get them out of the way. I don't want to just throw them away but it's hard finding someone to give them to. Most social media groups won't allow you to post about them and I understand why that is. I definitely will hold onto some just in case I have an issue with my current pump and need to go back to my old one while waiting for a replacement, but I don't need as much as I have.
- 12 hours, 7 minutes ago
  
  Lawrence S. likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
- 12 hours, 8 minutes ago
  
  Lawrence S. likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  I gave "leftover supplies" to the Diabetes Centre that I attend as it is they, via our NHS (National Health Service), which pays for them. I KNOW that they use them as I've been approached by DSNs (Diabetes Specialist Nurses) when I've attended clinic to see if I have "extra supplies" with me as I normally carry a few set changes, etc. with me.
- 1 day, 6 hours ago
  
  Jeanne McMillan-Olson likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
- 1 day, 6 hours ago
  
  Jeanne McMillan-Olson likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
- 1 day, 7 hours ago
  
  Jan Masty likes your comment at
  Have you (or your loved one with T1D) been diagnosed with retinopathy?
  No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
- 1 day, 7 hours ago
  
  mojoseje likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
- 1 day, 7 hours ago
  
  KarenM6 likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  It was so long ago, I don't remember...
- 1 day, 8 hours ago
  
  Janis Senungetuk likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
- 1 day, 8 hours ago
  
  Judy Hampton likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
- 1 day, 9 hours ago
  
  Patricia Dalrymple likes your comment at
  During your most recent appointment, about how much time did you spend with your main T1D health care provider?
  I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
Clear All

“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes.

T1D Exchange, 2 years ago 0 1 min read

Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes.

Click here to read the full publication

Tags #Publications

Patient perspectives on the use of half-unit insulin pens by people with type 1 diabetes: a cross-sectional observational study

T1D Exchange