The COVID-19 coronavirus has disrupted almost every aspect of our society and reframed the ways in which we conduct vital science. A substantial amount of research has been put on hold during the urgent press to find a vaccine for COVID-19, as well as to build the necessary medical equipment and logistical infrastructure to deal with the pandemic.

Further, there are many people in all walks of life and with many different backgrounds who currently are looking for ways to help, while still being constrained by quarantine procedures, lockdowns, and more. The staff of many organizations are now working remotely, while many other people are currently laid off and dealing with those challenges.

At T1D Exchange, we are doing our part by leveraging our capacity to reach tens of thousands of people living with T1D, as well as our connections and relationships within the clinical community. In the past month, we launched a first-of-its-kind surveillance study of people with T1D who have been diagnosed with, or who have suspected, COVID-19 coronavirus.

However, we have also been hard at work on efforts to support T1D research over the last year.

T1D Exchange Registry

Supported by The Leona M. and Harry B. Helmsley Charitable Trust, the T1D Exchange Registry is aiming to create the largest online cohort of individuals living with type 1 diabetes in the U.S.

Participants will take part in annual surveys, enabling researchers to learn more about the type 1 diabetes management and progression, acute complications, glycemic control and utilization of health services.

The Registry is structured as a mobile-friendly, online experience, which will enable individuals living throughout the U.S. to share their personal experiences and data. In the future, Registry participants will also have the option to take part in additional research opportunities such as completing additional surveys or uploading health device data.

This is a challenging time for people around the world, but participating in research doesn’t have to be difficult. The T1D Exchange Registry offers a way to help from the safety and security of your own home.

For more information, or to join, visit the T1D Exchange Registry or contact us at 617-892-6165 or Registry@T1DExchange.org.