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    • 12 hours, 36 minutes ago
      Kristi Warmecke likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Unlike most of the comments on this subject matter, I have needed glucagon several times per year. I am very active, and work hard around the house. I have a Tandem X2 pump with Control IQ and a Dexcom G7 sensor. However, from time to time, my blood sugars drop quickly, or I spend too much time between taking my meal insulin dose and eating my meal, where I need help. The glucagon has come in very handy. For me, it would be fool-hardy to be caught without it. Regarding cost, the price on glucagon has shot up, drastically, over the past year or two, even with health insurance. Luckily, I was able to find a generic, NOT pre-mixed glucagon. It is referred to as "Glucagon Emergency Kit For Low Blood Sugar 1MG." It's the old fashioned kind where you have to mix it yourself. But, at least I have something in case of an emergency.
    • 15 hours, 59 minutes ago
      eherban1 likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      I use InPen and it's great. Except they aren't keeping up with iOS so you now have to unlock your phone and open the app to check IOB instead of simply looking at the home screen. You can tell when app developers aren't users, otherwise they'd know how much of a pain this is when you check 50 times a day
    • 17 hours ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Insurance won't cover and it was several hundred dollars.
    • 17 hours, 2 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 17 hours, 3 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 17 hours, 4 minutes ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I do because it Costc me over $300 to replace it. Too expensive.
    • 17 hours, 30 minutes ago
      John Barbuto likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      Medicare has added FIASP for 2026! Besides the great news of being able to use this once again, it is one of the few fast acting insulins that works with the inPen. I am considering doing that in the new year
    • 17 hours, 30 minutes ago
      John Barbuto likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      Been using fiasp for 2 years (in the UK) and it's significantly better than novorapid. Would highly recommend to everyone, especially if you find your insulin a bit slow to act.
    • 18 hours, 23 minutes ago
      Lozzy E likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      Medicare has added FIASP for 2026! Besides the great news of being able to use this once again, it is one of the few fast acting insulins that works with the inPen. I am considering doing that in the new year
    • 21 hours, 59 minutes ago
      Ahh Life likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      The last Glucagon prescription that I purchased was 15 years ago. Now it's way too expensive because my insurance doesn't cover it. They just want us to either die or use ambulance service to use or send us to ER. Pretty stupid to me. I've had T1D for 52 years and never needed it really. Only 3 times during early morning hypos in 2015-16 I needed rescue to wake me.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      My experience over the past 65 years is that a sugary drink and patience will bring me out of a low satisfactorily. If I’m unconscious, as has happened four or five times over that period, the EMTs know what to do.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No I haven't a glucagon in yeans. Reason being:, every time I had a prescription, the glucaagon was never used and expired.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I do because it Costc me over $300 to replace it. Too expensive.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Insurance won't cover and it was several hundred dollars.
    • 1 day, 3 hours ago
      René Wagner likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No,insurance won't cover it. T1D for 45+ years and haven't had a situation where I needed it - so far so good
    • 1 day, 5 hours ago
      Vicki Breckenridge likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 1 day, 12 hours ago
      Richard likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 1 day, 13 hours ago
      Dennis Dacey likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      My experience over the past 65 years is that a sugary drink and patience will bring me out of a low satisfactorily. If I’m unconscious, as has happened four or five times over that period, the EMTs know what to do.
    • 1 day, 13 hours ago
      Dennis Dacey likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Expiration dates are put on by the manufacturerbecause they have to, and almost never indicate the product won't work. I am confident if I need it , it will work.
    • 1 day, 13 hours ago
      Dennis Dacey likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      With the latest monitoring technology I will probably never need it. I did need it a couple of times in the past, many years ago, and I do have expired Glucagon on hand. I do question whether expiration is real, since until it is mixed, what is there to expire?
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Have you been diagnosed with neuropathy? If so, please share your top management tips in the comments.
      My endocrinologist is very good about following the standards of care and looks at my feet every three months when I’m in as well as once a year he does a thorough test with a microfilament and a tuning fork regarding my feet. He says that there is mild neuropathy and at this point, it has not caused me any real problem no pain, numbness, tingling. I recently had a nerve conduction test on my hands because there was concern that there might be something going on with my spine and the neurologist did tell me I had some neuropathy in my hands along with carpal tunnel syndrome in both of them. This all was a surprise to me. I have had a complaint of periodic numbness in some fingers of both hands which he said at this point is mainly being caused by carpal tunnel syndrome. So I think a lot of people with diabetes may be unaware of some mild neuropathy unless their doctors are doing regular thorough testing. my cardiologist also suspects that the fact that my blood pressure tends to go all over the place, sometimes being high, and then crashing to extremely low levels is caused by autonomic neuropathy, and I suspect that some of my chronic gastrointestinal distress may also be caused by some neuropathy. diabetes for 64 years so not a surprise.
    • 1 day, 17 hours ago
      Bill Williams likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I have been a T1D for 57 years. I have not had Glucagon on hand in 25+ years. Normal carb/sugary items seem to be ok.
    • 1 day, 18 hours ago
      Lee Tincher likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      With the latest monitoring technology I will probably never need it. I did need it a couple of times in the past, many years ago, and I do have expired Glucagon on hand. I do question whether expiration is real, since until it is mixed, what is there to expire?
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Molly Jones

      I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.

      4 years ago Log in to Reply
      1. rick phillips

        That is tough when the dog has celiac. God forbid they buy a parrot.

        1
        4 years ago Log in to Reply
    2. Natalie Daley

      Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma

      4 years ago Log in to Reply
    3. Lawrence S.

      Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
      I find this to be more restricting than diabetes. It has been devestating for me.

      2
      4 years ago Log in to Reply
    4. Christine Gran

      No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.

      1
      4 years ago Log in to Reply
    5. ELYSSE HELLER

      I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.

      3
      4 years ago Log in to Reply
      1. AnitaS

        Never heard of that one!

        1
        4 years ago Log in to Reply
    6. Karen Newe

      Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.

      4 years ago Log in to Reply
    7. Jan Brooks

      I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.

      4 years ago Log in to Reply
    8. Lynn Smith

      I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.

      4 years ago Log in to Reply
    9. Mary Ann Sayers

      No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.

      4 years ago Log in to Reply
    10. Tina Roberts

      No. Not that I’m aware of.

      4 years ago Log in to Reply
    11. Margaret Moscrop

      No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
      Of the three she found ceiliac disease the most difficult.

      4 years ago Log in to Reply
    12. Maurine Bowser

      Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?

      4 years ago Log in to Reply
    13. Jneticdiabetic

      I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      No and I was recently tested for it, again.

      4 years ago Log in to Reply
    15. Wanacure

      To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.

      4 years ago Log in to Reply
    16. Kelly Wilhelm

      I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…

      4 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

    You must be logged in to post a comment.




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