If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!

Activity
- 12 hours, 20 minutes ago
  
  TEH likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I changed to the Dexcom G7 from the Dexcom G6. I got a new Tandem T:slim X2 last year (2023) to replace my old one that was out of warranty.
- 14 hours, 33 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I kept my Tandem pump, but changed From Dexcom G6 to G7.
- 14 hours, 34 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  Upgraded from Dexcom G6 to G7.
- 14 hours, 34 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I switched from Dexcom G6 to G7 this year. I've had the same Tandem T:slim X2 pump model for many years now, although it's been replaced a couple of times for charging problems.
- 14 hours, 34 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I changed to the Dexcom G7 from the Dexcom G6. I got a new Tandem T:slim X2 last year (2023) to replace my old one that was out of warranty.
- 18 hours, 55 minutes ago
  
  Cristina Jorge Schwarz likes your comment at
  Do you try to have healthier options on the days leading up to a holiday get-together?
  I always try to eat healthy. Holiday time is no different.
- 18 hours, 55 minutes ago
  
  Cristina Jorge Schwarz likes your comment at
  Do you try to have healthier options on the days leading up to a holiday get-together?
  Your brain may be having a holiday, but your body is still T1D. It doesn’t take vacations or holidays. Changing routines rarely works out well.
- 1 day, 5 hours ago
  
  Janis Senungetuk likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 1 day, 12 hours ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  I had 4 with my endocrinologist because I have a pump and Medicare requires it also had 1 appt with a diabetes pharmacist
- 1 day, 12 hours ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 1 day, 15 hours ago
  
  TEH likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 1 day, 16 hours ago
  
  Gerald Oefelein likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  Oh, I also went to diabetes training camp for the second year and honestly, that's the most helpful thing I do. Several days with endocrinologists, educators, dietitians, sports physiologists, and others, most of whom also have type one.
- 2 days, 5 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  It depends if you include my Medicare Part B and Part D premiums. Those are $156 and $180 per month.
- 2 days, 5 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 3 days ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 3 days ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
- 3 days, 9 hours ago
  
  Anita Stokar likes your comment at
  Do you use insulin pens or vials?
  I do! Also for if I want a larger bolus (I'll often use the pod for part and the pen for part) to avoid over saturating the pod site, or if I'm worried my site isn't absorbing well enough but I'm not 100% convinced enough to pull it off. I always have a pen in my bag in case of emergencies (though I do use vials to fill my pods) and I figure it's good to use the pen occasionally in the "use it or lose it" mentality. I'm happy keeping an active pen for many months or even a year but I'm sure it would fail eventually and need to be tossed.
- 3 days, 11 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes for close, accuracy is a challenge and the dose may be off, just part of the process.
- 3 days, 11 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I am blessed, in 30+ years of pumping I've only had one pump failure. A Minimed pump failed on a flight home.
- 3 days, 11 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 3 days, 11 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don’t know how much long acting insulin I would need if my pump stopped working. I would simply contact my doctor, asking for the long acting that I’ve have used and would ask him to help me figure out how much of it I would need on a daily basis. When that has happened recently, I would just give myself periodic shots of my regular fast acting to tide me over.
- 3 days, 11 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 3 days, 12 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 3 days, 12 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 3 days, 12 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
Clear All

If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow’s question!

If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.

8 Comments

Kristen Clifford

I AM the child with T1D, and I’m 38! LOL.

3 years ago Log in to Reply
DiabetesC

👀

3 years ago Log in to Reply
Lakesha McDonald Kee

I am a parent with T1D and now have a child with T1D.

3 years ago Log in to Reply
Mary Dexter

I am not a child. Diagnosed at age 48.

3 years ago Log in to Reply
Yaffa Steubinger

I don’t have a child with T1 but I passed on my T1 autoimmune gene to two of my grandsons.

3 years ago Log in to Reply
Bob Durstenfeld

I am the grandparent of a child who is four, but was diagnosed at 18 months. Within the first month if DX she was on a Tandem pump with diluted insulin and a Dexcom CGM. THE follow app has been indispensable for our family.

2

3 years ago Log in to Reply
Sue Herflicker

I have 2 T1D son’s diagnosed at age 23 months and 4 years old. Both are now 35 and 27. I was diagnosed LADA at the age of 56. And my brother was diagnosed at age 4 now 57.

3 years ago Log in to Reply
kflying1@yahoo.com

Not yet – though I have 4 children who have been diagnosed as pre-diabetic.

3 years ago Log in to Reply